In this part of the panel debate on the Role in a World of “Data Liberacion” founder of Chordoma Foundation Josh Sommer tells the story about how he was diagnosed with Chordoma and how he funded the Chordoma Foundation with his mother as a reaction to the lack of treatments available. Josh is working to help coordinate data sharing between different researchers.
SUBTEXT: Jamie Heywood, Co-Founder and Chairman of PatientsLikeMe, spoke at the recent Health 2.0 DC conference. While on stage, Heywood issued a challenge to federal agencies to "change what we pay for."
At the Health 2.0 Washington DC Conference Aneesh Chopra, Chief Technology Officer of the US Government, gave a keynote address on incorporating new capabilities into the nation’s healthcare system. One of the topics that he spoke to was the culture gap between consumers and government.
At the Health 2.0 Goes to DC conference Esther Dyson gave a powerpacked 3 minute rant about how the Health ecosystem really works — dividing it into three markets: Healthcare, Bad Health and Health 2.0.
At the Health 2.0 June conference in DC Chief Technology Officer of the US Health & Human Services, Todd Park, participated in the panel discussion on Health 2.0’s role in a world of “Data Liberacion”. He spoke about the data libration movement and how the government has made great amounts of health data available to developers resulting in apps and tools that can provide new insights and improve healthcare.
Leave it to others to point out this city’s shortcomings. The Washington, DC, I know draws in the best & brightest, engages in debate, and gets things done.
Tim O’Reilly recently said that within the federal government he has found “an intense passion among people trying to make change.” Todd Park, CTO of HHS, expanded on that theme yesterday as he described his federal co-workers as just as smart, just as creative, and just as entrepreneurial as anyone he worked with in the business world.
Every week we bring you a new video from Health 2.0! This week we’re featuring The Patient is In, a session focusing on how Health 2.0 tools are making a difference for patients.
To see more videos from past Health 2.0 conferences, or to purchase the entire conference DVD sets from ’07 & ’08 click here. 2009 DVD sets will be available shortly, please check back for updates.