So Modern Healthcare‘s Joseph Conn has a whole page to write about the Cleveland Clinic and he writes just about HIPAA and the fact that this pilot is not going to be covered by it. Writing in the San Francisco Chronicle Victoria Colliver talks about not a lot more, but at least she has someone stating the bleedingly bloody obvious—
"If it’s made convenient
enough and easy enough, people will be no more concerned about privacy
with these systems than they are with their financial information," he
said. "Far more people die because health information is not released
or difficult to get … than anybody’s ever been harmed because the
information has been inadvertently released."
OK so it was me she quoted, but someone needs to give Deborah Peel
and whoever the hell the World Privacy Forum is a big shake. I say this
as a card-carrying member of the ACLU and Amnesty International who is
deeply concerned about anyone’s private information and what use is
made of it.
And the shake is, if a government overhears your private information
illegally (or quasi-legally) it can use that information to take away
your freedom and worse. So the standard for their ability to access
that information should be an awful lot higher than it is in virtually
every country—including this one.
If a private corporation unwittingly lets slip your private health
data, or even uses some aspect of it knowingly to target you for
marketing, the chances of you suffering much from it are very, very low.
These are vastly different things, and conflating the two does not help in the least.