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App-Happy Health Care Full of Optimism, Money


There is a corner of the health care industry where rancor is rare, the chance to banish illness beckons just a few mouse clicks away and talk revolves around venture deals, not voluminous budget deficits.

Welcome to the realm of Internet-enabled health apps. Politicians and profit-seeking entrepreneurs alike enthuse about the benefits of “liberating data” – the catch-phrase of U.S. Chief Technology Officer Todd Park – to enable it to move from government databases to consumer-friendly uses. The potential for better information to promote better care is clear. The question that remains unanswered, however, is what role these consumer applications can play in prompting fundamental health system change.

Michael W. Painter, a physician, attorney and senior program officer at the Robert Wood Johnson Foundation, is optimistic. “We think that by harnessing this data and getting it into the hands of developers, entrepreneurs, established businesses, consumers and academia, we will unleash tremendous creativity,” Painter said. “The result will be improved and more cost efficient care, more engaged patients and discoveries that can help drive the next generation of care.”

The foundation is backing up that belief with an open checkbook. RWJF recently awarded $100,000 to Symcat, a multi-functional symptom checker for web and mobile platforms. Developed by two Johns Hopkins University medical students, the app determines a possible diagnosis far more precisely than is possible by just typing in symptoms as a list of words to be searched by “Dr. Google.” Symcat also links to quality information on different providers and can even direct users to nearby emergency care and provide an estimate of the cost.

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ONC Launches the Reporting Safety Events Challenge

This challenge addresses a stark reality centered on hospitals struggling to increase internal incident reporting — a major reason being the busyness of care providers. Daily, hospital workers fight to create effective systems for the quality and risk management staff to complete root cause analyses and follow-ups, which are required by both the Centers for Medicare & Medicaid Services and the Joint Commission. However, their efforts are not always effective.

On top of that, it is said that quality and risk management staff suffer from reporting fatigue in a paper-based reporting system, which affects reporting frequency and quality. All of their energy is exuded in trying to convince physicians and nurses to report incidents (not just talk about them in the halls), and asking that they do a thorough investigation to fill out the appropriate forms to fax them to the appropriate agencies.

To allow progression of our understanding of patient safety issues, it is vital to innovate beyond the existing tools so that a fresh system will collect and analyze information that characterizes patient safety events in a standardized, discrete, and measurable way.

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Latest CBO Report on Health Law Adds to Business Uncertainty

Photograph by William B. Plowman/Redux
The Congressional Budget Office’s new estimates of the budgetary impact of the Affordable Care Act, made in the wake of the Supreme Court’s ruling last month, glides right by one obvious fact: the budget analysts really have no idea how the court ruling will affect their previous estimates.

The CBO report says very clearly that “what states will be able to do and what they will decide to do are both highly uncertain.” Translation? They don’t know any more than anyone else right now about how states will act, now that the high court has determined that the federal government can’t force states to participate in the expansion of Medicaid by withholding the federal share for existing activities.

CBO isn’t to blame for this uncertainty. Rather, they should be commended for their candor in acknowledging the degree of uncertainty that remains. Most news reports and commentaries on the new CBO findings have downplayed or ignored this problem.

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The (Great) Colonoscopy Experience

Today, as Kathy finished her last radiation therapy appointment, I had my first screening colonoscopy – a rite of passage for new 50 year olds.

Although a bit of a personal issue, I’m known for my transparency and I’m happy to share the experience so that others approaching 50 know what to expect.

The preparation is the hardest part.   Three days before the procedure, it’s recommended that you reduce the quantity of high fiber foods you eat – fruits, vegetables, nuts etc.  For me that was particularly challenging since my entire diet as a vegan (who tends to avoid white flour, white rice, and white sugar)  is high fiber.    I moved to soups and brown rice.   A day before the procedure (really 36 hours), you move to a clear liquid diet – apple juice, broth, and tea.   In my case I drank a cup of vegetable broth and apple juice every 3 hours.

At 7pm the night before the procedure, the real challenge begins.  The bottle of magnesium citrate reads “a pasteurized, sparkling, laxative”.   Sounds so appealing.   The first dose is 15 ounces.   The bottle warns that the maximum therapeutic dose is 10 ounces in 24 hours for adults, but colonoscopy is a special case.   The 15 ounces of laxative is followed by 24 ounces of clear liquids over the next 2 hours.   Keep in mind that you have not eaten any solid food for 24 hours at this point.   Sparkling laxative followed by broth and apple juice is not Chez Panisse.

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Things Are About to Get Interesting

It was a chance encounter.

After all it’s not every day you see an internist who still frequents a hospital.  We’ve known each other for years and he’s been watching the changes in health care, too.

“Boy, they’re really not happy Over There.  Seems they’ve contracted with Big Boy insurance as part of their new ACO model.  Everyone’s going to get their piece before the doctors: Over There hospital, their four million administrators,  lawyers, grounds crews, parking staff….  Then, after everyone else is paid, the doctors might get a few scraps if there’s some left over.  No guarantees.  All risk, no certainty of reward.  There was no way I could still go there.  I joined them, but had to leave when I saw how unworkable that was.”

“Isn’t this our new way forward?” I asked.

“I guess so.  Scary.  But I’ve got just a few more years.  Just have to get the kids through college.”

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Time For Biopharma To Jump On The “Big Data” Train?

In a piece just posted at TheAtlantic.com, I discuss what I see as the next great quest in applied science: the assembly of a unified health database, a “big data” project that would collect in one searchable repository all the parameters that measure or could conceivably reflect human well-being.

I don’t expect the insights gained from these data will obsolete physicians, but rather empower them (as well as patients and other stakeholders) and make them better, informing their clinical judgment without supplanting their empathy.

I also discuss how many companies and academic researchers are focusing their efforts on defined subsets of the information challenge, generally at the intersection of data domains.  I observe that one notable exception seems to be big pharma, as many large drug companies seem to have decided that hefty big data analytics is a service to be outsourced, rather than a core competency to be built.  I then ask whether this is savvy judgment or a profound miscalculation, and suggest that if you were going to create the health solutions provider of the future, arguably your first move would be to recruit a cutting-edge analytics team.

The question of core competencies is more than just semantics – it is perhaps the most important strategic question facing biopharma companies as they peer into a frightening and uncertain future.

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The Supreme Court May Have Saved Lives … by Keeping People Off Medicaid

Here’s the most underreported story of the summer. When the Supreme Court ruled on the Affordable Care Act (ObamaCare) it inadvertently liberated millions of people who were going to be forced into Medicaid. Now they will have the opportunity to have private health insurance instead. What difference does that make? It could be the difference between life and death.

A Congressional Budget Office (CBO) report this week says there are 3 million such people. The actual number could be several times that size. But first things first.

Imagine that you are the head of a family of three, struggling to get by on an income, say, of $25,000 a year. You’ve signed up for your employer’s health plan because you want your family to get good health care when they need it. But that takes a big bite out of your paycheck — $250 a month.

When you first heard about the president’s health plan, you heard him say that if you like the plan you’re in you can keep it. That was good news. You also believed the whole point of the reform was to help families like yours get health insurance if for some reason you had to seek insurance on your own.

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The Olympics, Doctors, NHS, Transformation, and Heroes: Why the Difference between USA and UK?

I was surprised when the Opening Ceremonies of the Olympics in London honored two of my favorite institutions:  the National Health Service and the World Wide Web.  I was not surprised when LA Times sports writer Diane Pucin posted the following tweet: “For the life of me, though, am still baffled by NHS tribute at opening ceremonies.  Like a tribute to United Health Care or something in US.” @swaldman responded to the sports writer with “Well, maybe, if United Health Care were government-run and a source of national pride.”

I was not surprised when Meredith Vieira and Matt Lauer of NBC admitted they had no idea why Tim Berners-Lee was being honored by sending out a tweet.  Ever since I read his book Weaving the Web:  The Original Design and Ultimate Destiny of the World Wide Web by Its Inventor (HarperSanFrancisco, 1999), Berners-Lee has been one of my heroes.  Finally locating my hard copy of the book in the guest bedroom where my son Colin used to sleep, I quickly located the marked passage I was looking for:

“People have sometimes asked me whether I am upset that I have not made a lot of money from the Web.  In fact, I made some quite conscious decisions about which way to take my life. These I would not change…. What does distress me, though, is how important a question it seems to be to some.

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HealthCamp Boston 2012: Brainstorming the Future of Health Care

HealthCamp Boston is a forum for people with interest in all areas of health and wellness to gather, to generate ideas, and to take practical steps towards building the future of health care. HealthCamps are different from traditional conferences where speakers talk at you. At HealthCamp Boston, an “unconference,” attendees set the agenda, and all contribute to the event according to their interests.

The Boston area is a center of innovation for all aspects of health care, so you can be certain that people at HealthCamp Boston will be discussing things like:

· Big Data in health care

· Improving engagement and outcomes through mobile devices and social media

· Personalized medicine and translational medicine

· Empowered patients

· Practical impacts of health care reform

· and more…

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Facebook May Grant Researchers Access to Study Data

Because nearly one billion users produce a lot of data, Facebook has had a hand in publishing more than 30 research papers since 2009, including research (.pdf) that may link social-networking activity and loneliness.

But outside researchers have been unable to validate those studies because Facebook refused to release the underlying raw data, citing the need to protect users’ privacy. Now Facebook is considering changes to its policy. Nature News reports:

Facebook is now exploring a plan that could allow external researchers to check its work in future by inspecting the data sets and methods used to produce a particular study. A paper currently submitted to a journal could prove to be a test case, after the journal said that allowing third-party academics the opportunity to verify the findings was a condition of publication.

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