The Health Care Blog – Page 753 – Everything you always wanted to know about the Health Care system. But were afraid to ask.

Above the Fold

Crowdsourcing the Future: Health 2.0 and HIPAA

Jan 27, 2011• 6

By DEVEN McGRAW

The Health 2.0 movement has seen incredible growth recently, with new tools and services continuously being released. Of course, Health 2.0 developers face a number of challenges when it comes to getting providers and patients to adopt new tools, including integrating into a health system that is still mostly paper-based. Another serious obstacle facing developers is how to interpret and, where appropriate, comply with the HIPAA privacy and security regulations.

Questions abound when it comes to Health 2.0 and HIPAA, and it’s vital we get them answered, both for the sake of protecting users’ privacy and to ensure people are able to experience the full benefits of innovative Health 2.0 tools. We can’t afford to see the public’s trust in new health information technology put at risk, nor can we afford to have innovation stifled.

To help solve this problem, the Center for Democracy & Technology (CDT) has launched a crowdsourcing project to determine the most vexing Health 2.0/HIPAA questions.

This is where you come in:

Whether you are a healthcare provider, a Health 2.0 developer or an e-patient, we hope you’ll visit our website to submit your questions on Health 2.0 and HIPAA.

Once CDT has received your questions, we’ll use them to urge the Office of Civil Rights, which enforces HIPAA, to provide clarification. We’ll accept questions until Feb. 11, 2011, so please weigh in soon, and ask others to do the same.

Deven McGraw is Director of the Health Privacy Project at the Center for Democracy & Technology.

Commerce Clause Challenges to Health Care Reform

Jan 27, 2011• 29

By MARK HALL, JD

The following article, forthcoming in U. Penn. L. Rev., pinpoints the strongest arguments for and against federal power under the Commerce Clause to mandate the purchase of health insurance: http://papers.ssrn.com/sol3/papers.cfm?abstract_id=1747189

Among the key points I make in defense of this federal law are:

1. The “commerce” in question is simply health insurance, and not the non-purchase of insurance as challengers have framed it. Because “regulate” clearly allows both prohibitions and mandates of behavior, mandating purchase is lexically just as valid an application of the clause as is prohibiting purchase or mandating the sale of insurance.

2. Although existing precedent might allow a line to be drawn between economic activity and inactivity, there is no reason in principle or theory why such a line should be drawn in order to preserve state sovereignty. Purchase mandates, after all, are as rare under state law as under federal law.

What People Living With Disability Can Teach Us

Jan 27, 2011• 1

By SUSANNAH FOX

The Pew Internet Project recently issued a short report noting that people living with disability are less likely than other adults in the U.S. to use the internet: 54%, compared with 81%. The first question many people ask when they hear that is, Why? The second is, What can be done? The third is, or should be, What can we learn from this?

Why?

Statistically speaking, disability is associated with being older, less educated, and living in a lower-income household. By contrast, internet use is statistically associated with being younger, college-educated, and living in a higher-income household. Thus, it is not surprising that people living with disability report lower rates of internet access than other adults. However, when all of these demographic factors are controlled, living with a disability in and of itself is negatively correlated with someone’s likelihood to have internet access.

Just 2% of American adults say they have a disability or illness that makes it harder or impossible for them to use the internet. Eight percent of people living with a disability say this is true. However, this estimate is based on a telephone survey, which does not include people who are not able to use either a landline or cell phone due to hearing loss. If you are interested in more details on this issue, Evans Witt, CEO of our polling firm, Princeton Survey Research Associates International, recommends the following article:

“Inclusion of People With Disabilities in Telephone Health Surveillance Surveys,” by Susan Kinne, PhD, and Tari D. Topolski, PhD [PDF]

Calendar: Medically-Related Social Media Websites

Jan 26, 2011• 6

By IRENE WANG

As four Doctor of Pharmacy (PharmD) fellows affiliated with Rutgers and Thomas Jefferson University, we are conducting an online survey on the use and evaluation of medically-related social media websites. We are aiming to gather your feedback as the end-user on what you expect to find or benefit from medically-related social media sites. This way, any potential unmet needs can be addressed in the future based on your valued responses.

Please visit our survey here: https://www.surveymonkey.com/s/T6K8XW8. All participants will remain anonymous and the survey will not ask for any private health information. It should take a maximum of 10-15 minutes to complete all of the questions.

We plan on presenting the results of our survey as a poster presentation at the annual Drug Information Association (DIA) conference in Carlsbad, CA on March 9th, 2011.

We appreciate your participation and support. Please feel free to reach out to us if you have any questions. Thank you! Dipam Doshi, Ashley Johnson, Edward Lee, and Irene Wang.

Irene Wang is a PharmD fellow affiliated with Rutgers University. She works for Daiichi Sankyo Inc.

Patients Lie

Jan 26, 2011• 14

By DAVIS LIU, MD

The most common question first year medical students ask me is how do they become efficient at taking a patient history. Can they skip certain parts of taking the patient history and avoid asking about a social history, whether a patient drinks, smokes, uses drugs, or is sexually active?

When can they stop asking about the review of systems, a list of questions asked about each organ system? A comprehensive history is used in the emergency room, hospital, or during an annual physical, not in urgent care or an outpatient appointment, right?

Wrong.

Patients lie and don’t even know it. It’s not that they mean to. In fact, they are trying to be helpful when giving a history of their symptoms. Medical students concerns about taking a fast history reflects two things. First is the reality of the limited amount of face time with patients, which unfortunately seems to be even less than the past. Second, more importantly, is their fascination and desire to get started on real medicine — what are the diagnoses, treatments, and tests that must be learned to be a good doctor.

In fact, what they realize after working with me is that the most important part of being a doctor is talking to patients and listening. Taking a good history is the essential part of being a good doctor.

Here are two examples of patients who I saw during the winter. The practice is busy this time of year. I’m often running late. Like many encounters, I’ve never met these patients before. In many ways, it can feel like an urgent care practice. Which patient is lying? Can you tell?

Health 2.0 Spring Conference Update

Jan 25, 2011

The Health 2.0 Conference, run by THCB founder Matthew Holt and colleague Indu Subaiya, announced additions to the lineup of its spring conference in San Diego. The Future of Research panel will focus on the emergence of user-generated content and patient involvement, and the impact on research and clinical practice. The panel of experts includes:

Susan Love, MD, pioneer cancer surgeon
George Lundberg, MD, former Editor JAMA, Editor in Chief, Cancer Commons
Gilles Frydman, founder of ACOR
Josh Sommer, Chordoma Foundation
Paul Wallace, Kaiser Permanente and the Society for Participatory Medicine
Deborah Estrin, Professor of Computer Science, UCLA

Health 2.0 will feature cutting edge applications in the areas of prevention, wellness, exercise and diet. Among the presenters scheduled to speak:

Lindsey Volckmann, Keas
Brian Witlin, Shopwell
Hemi Weingarten, Fooducate
Will Roesenzwieg, Physic Ventures
Abbe Don, IDEO
Arnie Milstein, Clinical Excellence Research Center at Stanford University

For additional details, please see the Health 2.0 web site.

Rip Van Doctor

Jan 25, 2011• 2

By BOB WACHTER, MD

Cindy Fenton is one of the best doctors I know, a superb clinician-educator who was directing the UCSF Department of Medicine’s educational programs when, in 2001, she stepped off the academic treadmill to raise her three children. With her youngest now in first grade, I recently managed to coax her back into clinical medicine. In early January she spent two weeks as an attending physician on the general medicine service at UCSF Medical Center, after a decade’s absence.

I asked Cindy for her observations, knowing that they’d be astute – and that sometimes the best way to truly see something is to step away from it, then view it again through fresh eyes. Some excerpts from her note to me are in italics (with irrelevant clinical facts changed to please the HIPAA gods); my comments follow:

The patients seemed sicker, the service busier, the residents’ abilities at about the same high level. There were far fewer “private” type admissions than I remember previously – mostly pulmonary transplant patients and some private GI patients. Even on these patients, the subspecialty attendings welcomed the medicine team’s input, so the dynamic seemed more positive.

Advances in Connected Health Sensor Technologies

Jan 25, 2011• 7

By JOSEPH KVEDAR

Most of the time I write about the psychology of patient, consumer or provider adoption. This is not an accident. The psychology of adoption is the next big hurdle for connected health to overcome. We have good evidence that connected health solutions can be engaging and sticky for patients, leading to improved self-care. Likewise, we have evidence that enriching data coming from patients to providers can lead to better care decisions and that these decisions, made and delivered in the moment of need, are the other half of the magic of connected health. Further we have a sense that those patients who are not interested in the level of engagement that connected health demands often have worse outcomes and therefore cost the system more.

But today, I want to talk about technology. Most of the time, I write from the perspective of a technology vision that includes continuous (or near continuous) sensing of multiple physiologic signals. These signals are flawlessly transmitted to a computing environment where decision support can be applied to aid in improved communication with patients and improved decision making by providers. The state of the art today is not so elegant.

We use multiple different sensors, both wired and wireless, communicating via a large variety of aggregator devices that then transmit the sensor outputs to us via the Internet. The environment is both user-unfriendly and error prone, which increases the technical support resources required. We have the strong sense that some individuals drop out of programs because the technology is too challenging for them, so we miss them before we can turn them on to the benefits of a connected health experience.

The marketplace for sensors is changing in a number of exciting, dynamic ways. First, a number of sensors are coming to market that have embedded mobile chips right in them. They are sold in the same way as the Amazon Kindle (the wireless connectivity is bundled in the price of the device).

Reflections on the Certification Experience

Jan 25, 2011

By JOHN HALAMKA, MD

On Friday, January 21, 2011, Beth Israel Deaconess Medical Center completed the certification of its enterprise EHR technologies via the CCHIT EHR Alternative Certification for Hospitals (EACH) program. Here's the press release. As I've written about previously, BIDMC (like many academic health centers) has a combination of built and bought technologies that collectively provide interoperability, clinical functionality, and security. We demonstrated all our Intersystems Cache-based hospital systems and our Microsoft SQL Server-based business intelligence systems.

The process was rigorous, requiring us to follow over 500 pages of scripts and implementation guides in a single 8 hour demonstration.

The staff at CCHIT were remarkable, educating us about the NIST script requirements, emphasizing the need to prepare, and clarifying aspects of the NIST scripts that were ambiguous or seemed clinically unusual.

NIST did a great job creating test scripts rapidly enough to enable vendors and hospitals to certify systems in time for meaningful use attestation. However, there are a few oddities in the scripts that are only discoverable during pilots in real hospital and eligible provider clinical settings. I strongly recommend that for all future certification, NIST pilot their scripts before they are issued for general use.