Twenty two years ago I received shocking news: I had Hodgkin’s disease, a cancer of the lymphatic system that affects primarily young people. At the age of 30 I began a long and to date successful effort to fight the disease and regain my health. I was lucky: I had good health insurance, access to top doctors, friends and family with the wherewithal to help. I also had a good education that helped me navigate the health and insurance systems and also remain employed. I also had a home to go to after each round of chemo and, three years later, after hospital treatment for a recurrence. “Scott” is not so fortunate. Twenty-seven years ago, at the age of 21, he lost his left leg after a car hit him. A month earlier, he had lost his job as a forklift operator, and with that, his health insurance. Unable to afford his own home, he was living with his mother. The money he recovered from the driver of the car that hit him barely covered hospital expenses and the lawyer’s fees.
ST. LOUIS — Melody Ping never thought she would be trying to moveout of a nursing home. She lived in a St. Louis apartment for 19 years and worked as an
accountant until two years ago, when she lost her job. Ping, who has
multiple sclerosis, couldn't find new work. When her unemployment ran
out, she ended up on Medicaid in a nursing home.
Ping, 51, is among tens of thousands of people nationwide who want to
live on their own, but instead remain in nursing homes, rehab centers
or state hospitals, often at a higher cost to taxpayers because of a
historic bias toward institutional care.
Ten years ago today, the U.S. Supreme Court said that
bias amounted to discrimination. Now, as disability advocates
celebrate the anniversary of that landmark ruling, they worry the Obama
administration is backing away from a pledge to give more people with
disabilities the option to live at home.
As a senator, Barack Obama co-sponsored the
Community Choice Act, pending legislation that would give
Medicaid recipients equal access to services in the community and not
force them into institutions. But the administration recently said it would
not address the issue as part of its proposed health care