Crowdsourcing the Future: Health 2.0 and HIPAA

The Health 2.0 movement has seen incredible growth recently, with new tools and services continuously being released. Of course, Health 2.0 developers face a number of challenges when it comes to getting providers and patients to adopt new tools, including integrating into a health system that is still mostly paper-based. Another serious obstacle facing developers is how to interpret and, where appropriate, comply with the HIPAA privacy and security regulations.

Questions abound when it comes to Health 2.0 and HIPAA, and it’s vital we get them answered, both for the sake of protecting users’ privacy and to ensure people are able to experience the full benefits of innovative Health 2.0 tools. We can’t afford to see the public’s trust in new health information technology put at risk, nor can we afford to have innovation stifled.

To help solve this problem, the Center for Democracy & Technology (CDT) has launched a crowdsourcing project to determine the most vexing Health 2.0/HIPAA questions.

This is where you come in:

Whether you are a healthcare provider, a Health 2.0 developer or an e-patient, we hope you’ll visit our website to submit your questions on Health 2.0 and HIPAA.

Once CDT has received your questions, we’ll use them to urge the Office of Civil Rights, which enforces HIPAA, to provide clarification. We’ll accept questions until Feb. 11, 2011, so please weigh in soon, and ask others to do the same.

Deven McGraw is Director of the Health Privacy Project at the Center for Democracy & Technology.

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6 replies »

  1. Deven,

    At the ME-P, we too believe that health 2.0 enterprise knowledge is a collective process; but not an entirely democratic one.

    And, while we welcome and appreciate the increased participation of all patients, providers and stakeholders – as well as contributing authors and commentators in the social medium – we should not abdicate our responsibility as experts and informed-review editors of the health 2.0 future, by burying it under the currently fashionable “wisdom-of-crowds.”

    So, take care in your efforts.

    Dr. David Edward Marcinko MBA

  2. How about if we apply crowdsourcing to healthcare itself?
    Like I have a condition and then either I or my PCP puts out symptom for crowd to evaluate? And then we give some incentive to one who gets is right?

  3. Wiki:
    ‘A concise definition of Health 2.0 is the use of a specific set of Web tools (blogs, Podcasts, tagging, search, wikis, etc) by actors in health care including doctors, patients, and scientists, using principles of open source and generation of content by users, and the power of networks in order to personalize health care, collaborate, and promote health education.’
    That’s not a concise definition, it’s a run-on sentence. I guess grammar 1.0 is outmoded.