By taking advantage of new online health tools, e-patients and health professionals
now have the ability to create equal partnerships that enable individuals to be equipped, enabled, empowered and engaged in their health and health care decisions.
That was the vision of Dr. Tom Ferguson, who coined the term e-patients and launched e-patients.net in 2006. Ferguson intended to upload his book-length overview of the online health revolution, “E-patients: How They Can Help Us Heal Health Care.” But unfortunately, he died a month later 2006, after losing a fifteen-year battle with multiple myeloma.
Following Ferguson’s death, a group of his friends and colleagues completed the paper and adopted the blog to carry on his work, as well as our own. Each blogger brings a different perspective when commenting on Health 2.0 developments.
We think the “E-patients” paper remains relevant in 2008 (PDF, wiki) and we hope to extend the findings into the future. To that end, we are also working on the creation of the peer-reviewed Journal of Participatory Medicine with the help of Sarah Greene of the New York Times; Bruce Shriver, PhD, of the Liddy Shriver Sarcoma Initiative; and George Lundberg, MD, of Medscape. We welcome your comments and suggestions.
Here’s a rundown of who we are and what we blog about:Dave deBronkart is a cancer survivor and blogger.
Susannah Fox is the principal author of the Pew Internet Project’s survey reports on e-patients and online health.
Gilles Frydman is the founder and president of the Association of Cancer Online Resources (ACOR.org).
Graedon, MS, and Terry Graedon, PhD, write consumer health books that
deal with drug and alternative therapies, write a syndicated consumer
health newspaper column, and host the syndicated public radio show, The People’s Pharmacy.
Dr. Alan Greene and Cheryl Greene
are co-founders of DrGreene.com. Recognized by the AMA as the pioneer
physician Web site, together they have been providing health
information and a community for parents around the world since 1995.
John Grohol, PsyD, is a pioneer in online mental health and founder of PsychCentral.com.
Dan Hoch is a neurologist based at the Massachusetts General Hospital
and an Assistant Professor at Harvard Medical School. An early
developer of online resources for patients, Dan helped found Braintalk.
Lebkowsky is an author and web strategist who went digital when he saw
the social potential of connected computers in the late 1980s. Since
then he’s been involved in online community and social network
development, net.activism, web development, and web strategy.
Charlie Smith is the executive associate dean for clinical affairs at
the University of Arkansas for the Medical Sciences and the founder of