I have spent several years working with specialty medical offices like oncology centers, diabetes clinics, IPAs (Independent Practice Associations), and disease advocacy groups seeking to build health care data warehouses and analytics solutions. During that time, I have seen the same concerns pop up over and over: “How can we understand the value and impact of our care if we only see the component of care that we provide? If we can’t understand our value, then how can we make sure that we are optimizing our care, getting reimbursed for our impact, and executing leading research in our specialties that helps find better medical treatments for our patients? How can we really care for patients effectively in the first place?”
Organizations are highly restricted in the ways they share data. HIPAA allows for data sharing between entities, but doesn’t provide for any mechanism or incentives to do so efficiently or in a scalable method. Also, the groups who should be sharing may find themselves in competitive situations where sharing could be perceived as risky. But in spite of this, some exciting developments have quietly been moving forward in the past few years that can help fill in pieces of the data last mile.
The rise of Meaningful Use 2 (MU2) compliant electronic medical records (EMR) with the objective to enable health information exchange (HIE) between systems now represents a potential solution to this challenge that has been exacerbating the fragmentation of the health care industry for years. Public HIEs have not yet demonstrated that they can resolve analytics issues or workflow changes. Instead, there are some new and useful models of HIE that show great promise that are likely being adapted from the lessons learned from the original HIE designs.







