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TECH/CONSUMERS: Standards for consumer health info

Still in Utah, still at the Information Therapy conference — A session on how to guide consumers to high quality content, that’s integrated with their care, electronically

Shorter Tom Lee (Calif HC Foundation): Standards for consumer data don’t really exist, but integration of all the technologies providers need without that consumer stuff is a bitch…and anyway the standards are being designed for providers. So this is tough.

Shorter Josh Seidman (Center for Information Therapy): PHRs are disconnected from EHR systems, and give data not information. Integrating a real EMR with a PHR with a content system is even more of a bitch. So getting the right info to the consumer when they need it is difficult.

Shorter Leslie Kelly Hall (St. Alphonsus Regional Medical Center, ID): Can we make looking at our info simpler without going to the level of granularity that providers or plans want? So lets not go to the level of complexity that’s more than we need. But there’s political leadership to do it now, which wasn’t there before.

Tom and Leslie agree with me that we need to change the business models to get there, and by the way CareEncentive may be doing that. (That was an interesting presentation, about how to get docs in Oklahoma to follow guidelines by paying them extra to answer questionnaires, and seeing cost reductions to boot). But Tom thinks that to save the day we need clinician organizations to step up and get the organizational, clincal process transformation done.

TECH/CONSUMERS/QUALITY: Information Therapy and care management

This panel has representatives from a care management vendor (Health Dialog), a staff model integrated system (GHCPS) and a big insurer (United).

Shorter George Bennet, Health Dialog — You make $3 for every 88 cents you spend on care management when you get the doctors involved. So the answer is to get care management companies to pay doctors to deliver information therapy, and pay them based on how well their patients can answer simple questions.

Best joke (from James Hereford at Group Health Cooperative of Puget Sound) — you know you’re west of the Mississippi when the agenda has both a Holstein and a Hereford on it.

Shorter James Hereford– Group Health is a provider that takes risk (a la Kaiser), and we don’t think like other insurers (and so it has hired a recovering mathematician to improve its consumer health systems). They’ve decided that the use of the web is to integrate and spread information, based around a clinical information system (Epic) and a messaging system. They had a business case for driving integration using technology–but most organizations don’t. Their payback for their $40m investment is in five years, and some facilities have done more eVisit (touches) than actual visits for their secure messaging. Now they have one in three of their patients using it. And they saved $1.4 million in transcription costs. In addition, they believe that with each email they are replacing a phone call, which costs $16-18 or a visit which obviously costs more.

Shorter Bob Tavares, UnitedHealth Group: If you want Information Therapy and consumer portal web sites, you’d better have some goals as to what you’re trying to achieve. United’s consumers site had no goals and Bob has just been hired to figure out what they are! So create some goals about the impact web-based therapy has on for example replacing inpatient care with outpatient procedures (and BTW saving United some cash). Consumers want benefit, costs and treatment outcomes/ quality information all in one place.

TECH/CONSUMERS: Holstein on Information Therapy

So it’s Fall in Park City, so here are some pictures of the view I’m getting.

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Yes that is a weather balloon rising over the valley.

Meanwhile back to the conference. Roger Holstein just left WebMd after it was spun off from the newly titled Emdeon. His talk is making think we’re back in 1998, by the way he’s reading his talk, which is a little off from a major keynoter.  However, he’s a powerful guy with a strong track record and what he’s saying is right, although it’s preaching to the converted here.

Imgp4559 As for the content. He started off saying that the Internet has changed the world. I think I heard the same thing back in the day 10 years ago about how amazing the Internet was and how it changed the world from Esther Dyson or Paul Saffo. Holstein is giving the "how great the Internet is now" (rather than the 1998 model of how great it was about to be) and how that the net will change healthcare, all put around the patient using technology.

This chart looks disturbingly like the original Healtheon chart from Jim Clark.

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However, he thinks that benefit information as provided by payers is woefully inadequate. No shit, Sherlock.  He thinks that payers need to expose understandable payment data, and benefit data, as that will help payers get HRAs (health risk assessments, he means not health reimbursement accounts) plus claims to personalize a person’s health record. The reduction in FICA taxes alone on the money diverted to FSAs (flexible spending accounts) should justify the cost of creating that information on a portal (I’m not sure that I agree with him that it’s that cheap!)  But today’s tools are far from where the market needs to be.  He’s right; although I was selling a "good enough" tool in 2001!

Providers: we should be able to do comparisons the way we do car shopping online — including information about outcomes and costs. And hospitals should have costs and outcomes (and cost per outcome) information up on the web…he used an example from New York where he had colon surgery. NYU med center had a 5% mortality rate while Sloan Kettering’s was 2% and Sloan-Kettering was $20,000 cheaper (although Alain Enthoven points out that it hasn’t changed patient or physician behavior in NYC or in Pennsylvania). He believes that combining that information with information therapy (right information to patients in right manner at right time) will really change behaviors in the system.

He thinks that it’s "funny" that payers have trouble connecting with consumers despite the fact that they have their health information and their financial information about their health. They should put them together for members.

Provider information–Medicare should release public data about hospitals and providers. And it should really show quality at a useful level that consumers want –to make sure this doesn’t fall under the control of big health plans. In addition consumers want much better information about providers(including physician specific severity-adjusted outcomes), who have a terrible information distribution track record. We should also allow consumers and physicians the ability to compare their care to national standards.

If the health care organizations spent more time sharing their data, then we’d get much better information about what works and what doesn’t, for example in off-label use of chemotherapy. But in oncology the information about staging, diagnosis, and drug use is already submitted on the medical claim if only payers would share that data de-identified, we could really advance this science very quickly.

I asked Holstein why it took so long for this information to get to where it is today. He says that it’s employers who are driving this and now finally health plans are following along. If you build it can you make them come? Maybe not, but if they do come change is tremendous. He says it’s happening now.

What about getting the data right for doctors, who say that the data’s always wrong?  He suggests that if you give the consumers access to the data they will self correct it, so then the data reported back to the docs from the health plan will be more accurate.

Interesting stuff, but I need to hear more about incentives and/or regulation….

TECH/CONSUMERS: Information Therapy, and a patient changing the world one baby at a time

So the Information Therapy, largely driven by Molly Mettler and Don Kemper from Healthwise, is the concept that if you put the right information in the right place and to the right person at the right time, then it can be transformative in health care, and health care can make money off it. Imgp4552

In order to get us jazzed about making money Molly gave 20 lucky winners who found chocolates under their seat a lottery ticket from the store in Boise, ID that has sold two multi-million dollar winning lottery tickets. I won $1.

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The first speaker was Susan Sheridan, chair of the Patients, Patient Safety Program from the WHO — A "consumer" who’s baby was rendered with cerebral palsy and husband was killed by two separate medical errors. Her first baby was visually assessed and noted to be yellow, but no one did anything else other than to give them a pamphlet about jaundice, but never said that it would cause brain damage or that she could ask for a test. 36 hours later after being told not to worry about it, he eventually was diagnosed with massive jaundice, which led to brain damage and the condition, kernicterus.

Her husband had a tumor, and they were told that the cells were typical.  6 months later it got worse–and eventually went into the spinal cord. Of course the test said "atypical", but they never saw that until that until after he died and she got the chart.

In neither case was the mistake revealed to them. She thinks that the most damaging problem for patients is the lack of disclosure (she didn’t say cover-up, but that’s what it is). She set up an organization called PICK, and browbeat the CDC, JACHO, AHQR, and a bunch of other agencies to issue alerts and tell hospitals to make the bilirubin test for excessive jaundice. But it’s still happening, and there are not yet universal screens for this. New guidelines from the American Academy of Pediatrics were re-issued, and they are producing films via hospitals and March of Dimes. HCA and other hospitals are working on it.

There’s now a campaign called What’s your baby’s Billi? and you can buy a wristband.  Give one out at a baby shower, and raise awareness.  My guess is that at $1 a bilirubin test (same blood as the PKU test that’s done anyway) its about $3m a year, which is probably a quarter the cost of a lifetime care for the average patient.

CalThis is a partnership  organization driven by a really determined person. But there still isn’t universal screening in hospitals even though there have obviously been lawsuits, and there’s tons of information. It sounds like a no-brainer, but it seems to be a typical story of the system not reacting–even when it can be easily done

I asked about the litigation she was involved in. Usually in order to get the money, plaintiffs have to sign gag clauses. Litigation now is being seen as a high-dollar issue for lawyers. Susan went to trial to avoid the gag order. But she wants the gag orders abolished–because of the gag orders, no one knew about this. But clearly this is a damn expensive game of Russian roulette for hospitals that are not routinely doing the bilirubin test, and providers who don’t put the patient information out there showing them the true level of risk.

But the good news is that one person can change the world, one baby at a time.

TECH: Special Prize for knowing this? (UPDATED and closed Weds at 4pm)

OK, first person to figure out why I put this screen-grab up up gets a special THCB prize, (and hint, it’s nothing to do with Frank Rich)

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You can click on the image to get a better look.

Put your guess in the comments.

4PM PST Tuesday.  Fixed the goof in the title (I blame IE again) and no, none of you have got it yet…

4pm Weds– Abby got it. It’s that the article about EMRs was the third most emailed article from the NY times; that’s got to be the most interest ever in a major newspaper about EMRs et al.  I will figure out what Abby will have to do for her prize.

TECH: JD Kleinke–the Arianna Huffington of health care

JD Kleinke has a great article in this months Health Affairs in which he gets into the meat of why our bastardized health systems multiple contradictory incentives prevent the kind of open standards developments that brought ATMs to banking and bar-coding to retail.  The answer, he says is a public works program akin to the Moonshot.

I have lots of positive things to say, but as this is me reviewing, first a few minor quibbles. JD says that:

The insurer WellPoint experimented with this problem by controlling the direct cost, offering 25,000 of its high-volume physicians an e-prescribing device free of charge. The popular press did its usual glass-half-empty health care reporting: An Associated Press reporter noted that one-quarter of physicians did not accept the systems, rather than the more quantitatively relevant fact that three-quarters did.

Actually the news is worse. Wellpoint offered either a free computer (allegedly with an eRx product on it) or a handheld eRx system. They didn’t insist that doctors signed up with the eRx service they were touting. Now doctors not being dumb. most of them took the free computer, which if it’s not a replacement for the 286 on their office clerk’s desk, they are now using for stock trading and their kids homework. Very, very few signed up for the handheld or started the eRx service. Wellpoint offered a good example of how to do this wrong.

JD also says:

Similarly, it was only under the threat of reimportation that the drug companies became willing, reluctantly, to publish drug prices, which they began to do in 2004. Their stock prices have yet to recover for this and numerous other reasons, most of which relate directly to pricing transparency, delivered via the Internet.

Again not quite all true, as it was the decay in the  pipelines of the major companies that cause their stock prices to tumble. But for sure they’d rather you didn’t understand their pricing intricacies– and you don’t! And that of course goes for the PBMs too.

But apart from my minor quibbles with his analysis (and George Halvorson thinks that insurers are doing better than JD gives them credit for in terms of data interoperability — although I doubt George has ever used the same customer service line at a local Blues that I have to!), JD’s conclusion about what’s wrong with health care IT is  spot-on.

All of these health system actors are allowed to indulge in this economically self-serving behavior because, aside from two exceptions noted momentarily, there is no unifying economic stakeholder in the health status of any individual American. The persistence of job-based insurance—combined with the constant movement of the insured person across jobs, insurance plans, and care settings—galvanizes the fragmentation, economic conflict, and persistence of FFS reimbursement. Lack of information, gross inefficiency, and shoddy quality generate more money for providers, and health insurers who should be motivated to do something about this are captive to conflicting business agendas that compel them to block access to information, slow down transactions, and hold onto money in the short run, even at the expense of persistently gross inefficiency and shoddy quality over the long run. Viewed through this lens of "realeconomik," it is easy to see that health care’s IT problems are not IT problems at all; they are health care system problems.

And of course the logical extension of this is not that IT will save the day — on its own it can’t, but that we need all incentives and payments in a single insurance pool, or multiple pools that have risk adjusted between them. This is of course what the single-payer crowd and Alain Enthoven have been saying for nigh on three decades.

The remarkable thing about all this is just how easily fooled JD was back in the 1990s when he wrote a book called Bleeding Edge extolling the virtues of the market solution, and was one of the fellow travelers in the Reggie Herzingler pack.  He even wrote a remarkable article in Health Affairs that claimed that Columbia HCA was creating a whole new infrastructure for the way health care worked because it was supposedly selling some share in its hospitals to local doctors. Indeed Columbia’s ads at the time said that "health care had never worked like that before". Several rather more seasoned health care policy luminaries like Uwe Reinhardt, Jeff Goldsmith and Bruce Vladek took turns in their commentaries in the same Health Affairs edition ripping JD to shreds, and within a few months the Federal investigation of Columbia/HCA proved that health care never had worked liked that before, at least not to the extent to which Medicare was systematically defrauded by one organization.

The good news (and it is good news) is that rather than seeking solace by reinterpreting his analysis, Kleinke pretty quickly realized that the free-market ju-ju juice he’d been drinking didn’t work for health care. His book Oxymorons (for which I attended rather a fun launch party in San Francisco) came out only two years later, basically showing JD saying that everything he’d thought about market driven health care was wrong. Not only am I not criticizing him for changing his mind, I applaud him for it. Another great commentator, Arianna Huffington, made a similar journey from free-market zealot to born again progressive at about the same time.  Even I was a teenage Libertarian who voted for Maggie Thatcher. So there is hope for those of you who still won’t face the facts.

Of course the implications of Kleinke’s piece are less fun. It all goes back to basic Marxism and structural-functionalism — those with the power will control the outcome just as long as they can. I saw David Brailer speak and agree with Kleinke last year. He said that there was no business reason for interoperability.  Kleinke lays out why there aren’t in most sectors of health care. However, Brailer then went on to claim that the US would soon have an fully functional interoperable health care IT system that was to be better than any other nations (including of course those nations which are a) both investing money and b) already have that single incentive system thing sorted out.  Perhaps Brailer knows something about the likelihood of single payer that the rest of us don’t, but I somehow think that he blows smoke.

So given that there won’t be serious incentive (i.e. insurance) reform, the best hope remains that we do discover the mythical ROI in health care IT. I am slightly less pessimistic than Kleinke about this. Yesterday I saw a talk by the CEO of a medical group in Utah that has had a very successful implementation of an EMR system, and has managed to eliminate costs from its operating budget, and take on more doctors without adding support staff. It’s even now making money by "leasing" its EMR system to other docs in the community. Similarly my recent analysis of the ePrescribing market (coming out soon to a web site near you) shows that in several cases the adoption of an ePrescribing system reduced overtime costs and improved patient flow in small physician practices. So on a organizational level there can be an ROI from systems like EMRs and ePrescribing. That is the best that we can hope for absent a legislative miracle.

Kleinke has the right solution to actually fix the overall problem — a return to the days of FDR (and Eisenhower too).

So too with the building of a national, ubiquitous, interoperable HIT system. The federal government can and should write the huge check and be done with it. Even with the inevitable graft and corruption that would ensue, this massive public investment would pay for itself many times over. Walker and colleagues have shown that the direct cost of building a national HIT system is $276 billion (in today’s dollars) over ten years but that the investment would generate direct savings of $613 billion during those same years and $94 billion per year thereafter.These savings do not include any of the ancillary benefits, such as massive reductions in endless administrative rework or the vast savings gained through better management of chronic disease.As Walker and colleagues point out, "The clinical payoff in improved patient safety and quality of care could dwarf the financial benefits projected from our model."

Of course Kleinke then notices the real world.

Back in the real world, the suggestion that the federal government fix this intractable problem by writing a check for a quarter of a trillion dollars is pure political fantasy. It makes economic and technical sense, and it is not without political precedent; however, no one in today’s Washington with the political power to say so would keep that power after saying so. The very idea of a public works project (at least within our own borders) sounds like an artifact from an era eclipsed by nearly three decades of hostility toward government-based solutions to domestic problems, combined with a seemingly religious belief in marketplace solutions for all of them.

But hang on a minute, what just happened last week? We decided as a nation to spend $200 billion rebuilding New Orleans. And not three years ago we apparently decided to spend double that on invading Iraq. And, unlike Iraq, at least with a health care infrastructure we know there’s some chance of getting a return on the "investment".

And even better is that we’re already spending the money, or at least it’s there buried in the $750 billion each year that the Federal and state governments shell out for Medicare, Medicaid, the VA, DOD, county hospitals, et al.  So a redirection of that money coupled with a mandate about getting payments on one platform and everyone using EMRs may well work. All we have to do is convince Congress that it matters. Can we somehow get this on the agenda of the loony Christian right? Perhaps we can tell them that Terry Schiavo was killed by an IT failure!

But the bigger problem always gets back to those incentives–and while JD tells the Feds to spend all that money, he never says the obvious, which is that creating the Federal health IT payer system wont a) cure the ability of insurers to game the system, b) will still leave providers the incentive of doing more and more, which in turn will (combined with the insurers’ cherry picking c) price more and more people out of insurance. JD bases his optimism in part on the fact that a hysterical (in both senses of the word) Regina Herzlinger thinks that pay-for-performance will make health care worse by suppressing new innovative treatments, and that the market driven system that Kleinke skewers so effectively will cure all ills. While it’s good that JD’s come over from the dark side, and clear that Reggie’s too far gone for any hope, I fear that her opposition alone is not quite enough to ensure that JD’s plan is a complete success.

So we need to go the whole hog.  We need a regulated, mandated IT infrastructure for health care, and we need a regulated, mandated universal insurance pool which is forced to use the correct incentives (either structureal or Enthoven’s quasi market-based ones), that will get the IT system to point its light at the right things.

Blackford Middleton gets this close to right in his commentary…oh you’ll just all have to subscribe to Health Affairs.

TECH: Are stents a waste of money? Maybe

This takes me back to one of my favorites. Two years ago a Stanford study suggested that we should dump the stents and have a by-pass instead, because they were more cost-effective. Stents only delayed the need for by-pass surgery. At the time I was poo-poohed by a couple of cardiologists who told me that it was all different now that we had drug-eluting stents. There wouldn’t be the restenosis that had made earlier bare metal stents in-effective. And indeed the drug-eluting stents have been so effective that their success has actually been a little too much for Boston Scientific to handle! It’s made so much money of its stents that its stock has fallen as Wall Street doesn’t believe that it can pull a smash hit like its Taxus stent off again!

But now with Medtronic introducing its new stent, some studies are emerging that question the value of the drug eluting stents. Last week’s news was that:

A study released at this week’s meeting, one of the largest clinical gatherings in Europe, indicates that drug-coated stents made by J&J and Boston Scientific aren’t cost-effective for all patients and should be restricted to those at highest risk for heart attack. The study will be released in the British medical journal Lancet on Saturday. In the study of 826 patients undergoing angioplasty, researchers from the University of Basel in Switzerland said that the higher cost of drug-coated stents was not compensated for by lower follow-up costs.

Although patients who received drug-coated devices experienced fewer heart attacks and deaths than those who were given the bare-metal variety, the added cost of avoiding one major complication using the drug-coated device was the equivalent of $22,815, the researchers said.

Of course as one technology strikes out, the new one is always there to replace it.

Fridley-based Medtronic Inc. gathered steam over the weekend after releasing two studies that claim its version of the device, called Endeavor, is durable over longer follow-up periods and shows no indication of clotting. After Endeavor received European regulatory approval on July 29, Medtronic launched the device in 75 countries worldwide, with a U.S. introduction anticipated in 2007.

But then later in the week yet another study came out in the NEJM suggesting that minor heart attacks do equally well with drugs as opposed to stents.

In a study colliding with established practice, recovery from small heart attacks went just as well when doctors gave cardiac drugs time to work as when they favored quick, vessel-clearing procedures. The surprising Dutch finding raises questions over how to handle the estimated 1.5 million Americans annually who have small heart attacks – the most common kind. Most previous studies support the aggressive, surgical approach. "I think both strategies are more or less equivalent. I think it is more a matter of patient preference, doctor preference, logistics and, in the long run, it could be a matter of cost," said the Dutch study’s lead researcher, Dr. Robbert J. de Winter of the University of Amsterdam.

Let’s hope for the sake of Boston Scientific, J&J, Medtronic and invasive cardiologists across this great land that no one from CMS or an insurance company reads the New England Journal! Although to be fair, the drugs they used to combat the heart attack weren’t exactly cheap anyway.

TECH: Google, blogs, IT will save the day, blah blah

So a ton of news today, but also a ton of work for your host from outside the blog world requires some brevity.  So go look elsewhere for more on these, although you’ll get the caustic comment from me.

First up Google enters blog searching. This is supposed to make Technorati et al very scared. I actually don’t understand how to use Technorati, but I understand how to use Google. (BTW somehow Google already searches THCB stories). My educated blog friends tell me that Technorati is important and so Google must be on to something. However, they totally screwed up Blogger when they bought it — so much so that I left it and went to TypePad despite the fact that Typepad costs money and Blogger is free! Hopefully they do searching better than tools.

Second, another study, this time from RAND says that the healthcare system can save a gazillion dollars ($162billion or maybe 10% a year) if it would only use IT better. Ha, bloody ha. Exactly who is going to give back their share of the pie? And by the time that happens we’ll figure out that $162 billion is about the annual increase of health care spending, so we’re just back to where we were the year before. I’m not at all convinced that these grandiose studies with their huge mythical numbers help, but the key is that we need something to start health spending going down year after year — not up — if I’m really going to be impressed. Unlikely!

TECH/POLICY: Things to think about in Katrina’s aftermath

Here’s my FierceHealthcare editorial today:

In Katrina’s wake the inquests are beginning after the tragic failure to get help to where it was needed, especially in New Orleans. For healthcare organizations there are some immediate lessons, wherever in the country (or world) you might be. What is your disaster plan, and is it good enough to sustain you for several days in a potentially lawless environment, with no outside power or supplies? And do you have an evacuation plan for patients and staff? Obviously this matters most for hospitals, but given that all paper records and many computer systems have been destroyed, all healthcare organizations — no matter what size — need to make sure that their data is electronically backed up, redundantly, somewhere far away from them. If your vital data isn’t electronic, now is the time to make it so. Finally as a nation, we need to find a way to guarantee health care insurance and access to everyone displaced, and the best way to do that would be to guarantee it to everyone in America. –

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