Today on Health in 2 Point 00, we have another takeover edition! On Episode 92, Jess talks to Louise Schaper, CEO of the Health Informatics Society of Australia (HISA) at HIC 2019. Louise’s key takeaway from the conference is that health tech in Australia is focused on humanity and improving outcomes for all people. Jess also asks Louise about the Australian Digital Health Agency’s MyHealthRecord, an online summary of individuals’ health information. It’s got a great participation rate with 90% of Australians opted in, but it’s not being utilized as much as it could be. Finally, Louise debunks some of the chatter around HealthEngine’s data scandal in which they were caught sharing health data with law firms. The thing is, the press has sold it as if they have full access to your medical data and has sold that, but that’s not the case.
Health Data Outside HIPAA: The Wild West of Unprotected Personal Data
By VINCE KURAITIS and DEVEN McGRAW
This post is part of the series “The Health Data Goldilocks Dilemma: Privacy? Sharing? Both?”
“…the average patient will, in his or her lifetime, generate about 2,750 times more data related to social and environmental influences than to clinical factors”
–McKinsey analysis
The McKinsey “2,750 times” statistic is a pretty good proxy for the amount of your personal health data that is NOT protected by HIPAA and currently is broadly unprotected from sharing and use by third parties.
However, there is bipartisan legislation in front of Congress that offers expanded privacy protection for your personal health data. Senators Klobuchar & Murkowski have introduced the “Protecting Personal Health Data Act” (S.1842). The Act would extend protection to much personal health data that is currently not already protected by HIPAA (the Health Insurance Portability and Accountability Act of 1996).
In this essay, we will look in the rear-view mirror to see how HIPAA has provided substantial protections for personal clinical data — but with boundaries. We’ll also take a look out the windshield — the Wild West of unprotected health data.
Then in a separate post, we’ll describe and comment on the pending “Protect Personal Health Data Act”.
Continue reading…Health in 2 Point 00, Episode 90 | One year older…
Today on Health in 2 Point 00, we’re wishing Matthew a happy birthday!
On Episode 90, Jess and I talk about the drama around Amazon PillPack and Surescripts, HelloHeart’s $12 million raise, and Cerner selling its health data. In the end, the data is going to have to flow after this battle between Surescripts and PillPack. For HelloHeart’s blood pressure and cardiovascular health management platform, have they found their niche or is it too little too late with others like Livongo, Omada and Vivify in the space already? Finally, Cerner has put in their earnings call that they’re going to develop a business model around selling their data, sending ePatient Dave on a Tweet storm, but how big of a deal is this really? —Matthew Holt
Announcing a New Series: “The Health Data Goldilocks Dilemma: Sharing? Privacy? Both?
By ZOYA KHAN
I would like to introduce you to a new ongoing series that THCB will be featuring called “The Health Data Goldilocks Dilemma: Sharing? Privacy? Both?”. It is about time we started talking about health data privacy and policy, and we have just the experts on hand to do so: Vince Kuraitis and Deven McGraw.
“The Health Data Goldilocks Dilemma: Sharing? Privacy? Both?” series will cover a whole host of topics that discuss, clarify, and challenge the notion of sharing data and if it should be kept private or made public. On the one hand, sharing health information is essential for clinical care, powering medical discovery, and enabling health system transformation. On the other hand, the public is expressing greater concerns over the privacy of personal health data. This ‘Goldilocks Dilemma’ has pushed US policymakers towards two seemingly conflicting goals: 1) broader data interoperability and data sharing, and 2) enhanced data privacy and data protection.
But this issue is even more nuanced and is influenced by many moving parts including: Federal & State privacy legislation, health technology legislation, policy & interoperability rules, data usage from AI & machine learning tools, data from clinical research, ethical concerns, compensating individuals for their data, health data business models, & many more.
Fear not, Deven & Vince are here to walk readers through this dilemma and will be providing pieces to help explain what is going on. Most of their discussion & pieces will cover 2 specific affected areas: 1) How are policymakers addressing health data privacy risks, and 2) The impact on business models within the Health Data Goldilocks Dilemma.
We hope you enjoy the series and if you have any pieces to add to it, please email me zoya@thehealthcareblog.com
Zoya Khan is the Editor-in-Chief of THCB & an Associate at SMACK.health
Is Good, Human-Centered Design in Healthcare Possible? | frog Healthcare Lead Stefania Marcoli
By JESSICA DAMASSA, WTF HEALTH
Frog, the renowned design and strategy firm, has been involved in healthcare for a long time. So, how are they infusing human centered design into the healthcare process? What is frog’s perspective on how healthcare companies can integrate design thinking into their solutions? And most importantly, what does good design in healthcare look like?
Filmed at the Frontiers Health Conference in Berlin, Germany, November 2018.
Jessica DaMassa is the host of the WTF Health show & stars in Health in 2 Point 00 with Matthew Holt. Get a glimpse of the future of healthcare by meeting the people who are going to change it. Find more WTF Health interviews here or check out www.wtf.health.
This Startup is Making Clinical Trials Easier to Run | Cyntegrity Co-Founder Artem Andrianov
By JESSICA DAMASSA, WTF HEALTH
Clinical trials are arduous and expensive, especially in this new regulatory climate. Cyntegrity, a new software tool has the potential to change the cost curve, by offering a dynamic, risk-based ecosystem for pharma, biotech, or medtech companies. Not only does Cyntegrity help these companies navigate protocol and regulation compliance, but they provide patient safety by identifying misconduct or fraud, and project management hazards. Best part? All mistakes are analyzed in real time. The alternative is somebody looking at a spreadsheet…terrifying!
Filmed at the Frontiers Health Conference in Berlin, Germany, November 2018.
Jessica DaMassa is the host of the WTF Health show & stars in Health in 2 Point 00 with Matthew Holt. Get a glimpse of the future of healthcare by meeting the people who are going to change it. Find more WTF Health interviews here or check out www.wtf.health.
Better than Blue Zones? The Pioppi Protocol | Pioppi Protocol Filmmaker Donal O’Neill
By JESSICA DAMASSA, WTF HEALTH
You’ve probably heard of Blue Zones…but have you heard for the Pioppi Protocol? The southern Italian secret to longevity, healthy aging, and peace of mind has been the subject of a hit movie, with books in seven different languages. Now, the Pioppi Protocol is going digital with a new mobile app thanks to Cardiologist Dr Aseem Malhotra and filmmaker Donal O’Neill. Find out all about the yet-to-be-released app, and the gorgeous fishing village in Pioppi, Italy that inspired the entire movement.
Filmed at the Frontiers Health Conference in Berlin, Germany, November 2018.
Jessica DaMassa is the host of the WTF Health show & stars in Health in 2 Point 00 with Matthew Holt. Get a glimpse of the future of healthcare by meeting the people who are going to change it. Find more WTF Health interviews here or check out www.wtf.health.
Health Startup Trends: US vs. Europe | Startup Health Academy Director Polina Hanin
By JESSICA DAMASSA, WTF HEALTH
Since 2012, Startup Health has been building a “global army of health transformers” within its accelerator program. Now, with 20% of their startups located outside of the US, they have a unique perspective on the trends shaping health startups and investment in the US vs. Europe, or other markets. Academy Director Polina Hanin works closely with the startups and gets a chance to see what technology, policies, and models are truly universal, and what needs a local context. Find out what some of the implications of universal healthcare are for startups. And, what advice she has for startups trying to break into the US market. What’s the one critical thing they often forget?
Filmed at the Frontiers Health Conference in Berlin, Germany, November 2018.
Jessica DaMassa is the host of the WTF Health show & stars in Health in 2 Point 00 with Matthew Holt. Get a glimpse of the future of healthcare by meeting the people who are going to change it. Find more WTF Health interviews here or check out www.wtf.health.
Hyperscaling: Startup Advice from Softbank | Sakshi Chhabra Mittal, VP Softbank Vision Fund
By JESSICA DAMASSA, WTF HEALTH
Softbank Vision Fund is a $100 billion technology-focused fund with an eagle eye on the tech that is poised to disrupt large markets, including healthcare. From hyperscaling to detailed advice on pitching, VP Sakshi Chhabra Mittal goes deep on what they’re looking for from startups, especially those that have closed their Series A and are looking for a B.
Filmed at the Frontiers Health Conference in Berlin, Germany, November 2018.
Jessica DaMassa is the host of the WTF Health show & stars in Health in 2 Point 00 with Matthew Holt. Get a glimpse of the future of healthcare by meeting the people who are going to change it. Find more WTF Health interviews here or check out www.wtf.health.
Gamification: The Future of ADHD Treatment | Vincent Hennemand, Akili Interactive
By JESSICA DAMASSA, WTF HEALTH
The team at Akili Interactive has developed the very first doctor-prescribed video game to treat cognitive dysfunctions like ADHD. With game developers from Lucasarts on their roster (that’s right…Star Wars) it’s no wonder they’re seeing north of 85% rates of compliance! Are video games really the future of treatments for cognitive dysfunctions? Akili Interactive is betting on it with plans to add treatments for depression, multiple sclerosis, and schizophrenia on the horizon.
Filmed at the Frontiers Health Conference in Berlin, Germany, November 2018.
Jessica DaMassa is the host of the WTF Health show & stars in Health in 2 Point 00 with Matthew Holt. Get a glimpse of the future of healthcare by meeting the people who are going to change it. Find more WTF Health interviews here or check out www.wtf.health.
