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Tag: Andy Oram

Open Research For Open Cures: A Report From Sage Congress

Over four years of Congresses, Sage Bionetworks has drawn together leading thinkers and doers throughout the fields of genetic research and drug development. For two days each year, the conference floor is colonized by clumps of eagerly networking PhDs from academic, pharma, government, non-profits, biotech firms, and patient advocacy groups–people who often glide from one domain to another within this tight-knit cohort.

A cohort, certainly, we can characterize this group of attendees, sharing as they do a mysterious language drawn from years of research most of us will never understand. But is it a community? That will be tested over the following year as Sage Bionetworks lets go of the Congress. Founder Stephen Friend says it is up to others to create the next Congress, and its success or failure will be a measurement of the sweat and passion that Friend and Sage have put into attempts to build a community.

Why should a reader look further at this struggle among a tiny elite, rather than clicking on the next article? Well, first, if you’re one of the 48% of Americans who took a prescription drug this month, you should be concerned about where new breakthrough drugs will emerge. If you visit this web site because you want a more responsive health care system that can match patients to treatments more quickly and cheaply, recognize that new methods are important nowhere as much as at the foundation of the system where new treatments are discovered. And if you are just curious about the potential for global cross-institutional teams and loose networks connecting experts with ordinary members of the public to find creative solutions to old problems, this article will provide insights.

Don’t get too close, you don’t know what I have

The premise on which Friend founded Sage is that research and drug development have stagnated and cannot progress without more collaboration and data sharing. Therefore, with all due regard for the presentations at the recent Sage Congress on cancer research projects and other individual experiments, the real theme of the conference is in the keynotes about open source, the use of social media, and crowdsourcing. The challenge of this community–if we find that it has indeed become a community–is to analyze and deal with the particular challenges that genetic research and drug development inject into trends toward open collaboration.

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Two Contrasting Approaches to Health Care’s API Revolution

It’s heavy tech time at THCB. Health 2.0 is running a developer conference called Health:Refactored on May 13-4, and a big topic there will be the opening of APIs from Microsoft, Intel, Walgreens, NY Health Information Network, MedHelp, Nuance and more. What’s an API, why does it matter for health care? Funny you should ask but Andy Oram from O’Reilly Radar wrote an article for THCB all about it!–Matthew Holt

As the health care field inches toward adoption of the computer technologies that have streamlined other industries and made them more responsive to users, it has sought ways to digitize data and make it easier to consume. I recently talked to two organizations with different approaches to sharing data: the SMART platform and the Apigee corporation. Both focus on programming APIs and thus converge on a similar vision off health care’s future. But they respond to that vision in their own ways. Differences include:

  • SMART is an open source project run by a medical school and is partially government-funded; Apigee is a private company.
  • SMART tries to establish a standard; Apigee accepts whatever APIs its customers are using and bridges between them.
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