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A Question of Worth

As an OB/GYN resident, I tried to reconcile quality and cost of care every day. This is the story of one patient who cost the system a lot of money, but I don’t know to this day if it was too much.

Cheryl (name changed) had HIV, a history of cervical cancer, and 3 kids. At age 35, she had been cured from cervical cancer after surgery and radiation therapy. However, due to treatment-related fistulas, she had been in and out of the hospital for most of the year. I was taking call for the gynecology service the last time her family brought her in, delirious and with black, sticky stool oozing from an opening in her unhealed abdominal incision. She needed wound care and close monitoring in the intensive care unit (ICU). I paged the ICU team.

The ICU fellow came promptly, and briskly refused to accept her to his unit. “She is a poor use of scarce resources,” he stated matter-of-factly. “Further treatment is futile.” Without missing a beat, I looked him in the eye and countered, “What if this was your sister? Your mom?” He relented begrudgingly, but added, “This is why health care is so expensive in this country. You surgeons don’t know when to let go.”

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Too Expensive to Treat? God and Medicine in the Neonatal ICU

 

In Too Expensive to Treat? Charles Camosy takes readers deep into the emotionally charged and expensive world of the neonatal intensive care unit to examine the hard truth about heath care rationing in the United States. While fully affirming the human worth of even the tiniest baby, Camosy maintains that all people have equal dignity and should have an equal right to a proportionate share of community health care resources. Readers may find Camosy’s arguments provocative, even troubling — but the conversation he draws them into is one that cannot be ignored.

Daniel Sulmasy
— University of Chicago
“A substantial contribution to the literature on controlling health-care costs. . . . Camosy has written a provocative book, marrying the ordinary/extraordinary means tradition to Catholic social teaching and arguing that it is morally necessary to take costs into account in making decisions about who should receive high-tech neonatal intensive care. Since the magnitude of the problems Camosy addresses will only increase, this is a book that should be read for years to come.”

Steven R. Leuthner
— Medical College of Wisconsin
“This book is a must-read for neonatologists and bioethicists, for religious leaders of all Christian traditions, and for policy makers. While Camosy focuses on the imperiled newborn and Medicaid, his argument could easily be expanded to imperiled cases of any age.”

Gerald McKenny
— University of Notre Dame
“Camosy not only shows us how to solve a pressing social and bioethical problem. He also shows us how principles regarding human dignity, ordinary and extraordinary means, and social justice unite to form a coherent bioethical approach to health care justice that resonates far beyond the Catholic tradition. Camosy’s proposal will delight some and disturb others, but it deserves the closest attention of neonatologists, bioethicists, health policy experts, and anyone who hopes for a more just health care system in the United States.”

Let Them Eat Cheesecake!

This is Atul Gawande, writing about The Cheesecake Factory in The New Yorker:

You may know the chain: a hundred and sixty restaurants with a catalogue-like menu that, when I did a count, listed three hundred and eight dinner items (including the forty-nine on the “Skinnylicious” menu), plus a hundred and twenty-four choices of beverage.

How many different dinners — say with two food items and one beverage — can you draw from 308 food choices and 124 beverages? I used to know how to do this. It must be in the millions. So how do you make that work? Timing is everything:

Computer monitors positioned head-high every few feet flashed the orders for a given station. Luz showed me the touch-screen tabs for the recipe for each order and a photo showing the proper presentation. The recipe has the ingredients on the left part of the screen and the steps on the right. A timer counts down to a target time for completion. The background turns from green to yellow as the order nears the target time and to red when it has exceeded it.

The restaurant doesn’t just get plates on the table, however. It aims for perfection:

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The Economics of Reimplantation

From The Annals of Internal Medicine doctors from the US have shown that ICDs can be safely resterilized and re-used for indigent patients in another country. In their study, Pavri et al collected 106 ICDs with three or more years of estimated battery life from either deceased patients or patients having devices explanted because of “upgrades” or infection and implanted then in 81 patients in a single hospital in Mumbai, India. From the Methods section of their paper:

We deleted all identifying patient information and lead information; programmed them to nonpacing mode, when possible, or lowered the outputs to the minimum possible values; turned off all sensing and therapies for ventricular tachycardia (VT) and ventricular fibrillation (VF); and deactivated all ICD alerts (auditory and vibratory). When a sufficient number of devices were collected, they were transported to India in batches. Transport was most often done by physicians (or friends and family members of physicians) who were traveling from the United States. The devices were placed in checked-in baggage in a clear plastic bag, and 2 letters were placed in prominent view. The first letter was signed by the donating physician, stating that the devices were of no commercial value and that they were being donated for reuse in patients who could not afford such devices. The second letter was signed by the Chief Executive Officer of Holy Family Hospital, stating that the hospital was expecting the devices for donation to such patients. Contact information for all physicians was provided in the letters.

Attempts at sending explanted devices by courier or mail proved difficult; without precedent, it was simply not possible to describe the purpose and nature of the shipment to shipping authorities or to insure the contents. We finally resorted to carrying the devices during travel to India in our personal baggage, as described. Some difficulties (requiring lengthy explanations) were encountered during baggage screening and, especially, at Customs in Mumbai.

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It’s The Platform, Stupid: Capturing the Value of Data in Campaigns — and Healthcare

If you’ve yet not discovered Alexis Madrigal’s fascinating Atlantic article (#longread), describing “how a dream team of engineers from Facebook, Twitter, and Google built the software that drove Barack Obama’s re-election,” stop right now and read it.

In essence, a team of technologists developed for the Obama campaign a robust, in-house platform that integrated a range of capabilities that seamlessly connected analytics, outreach, recruitment, and fundraising.  While difficult to construct, the platform ultimately delivered, enabling a degree of logistical support that Romney’s campaign reportedly was never able to achieve.

It’s an incredible story, and arguably one with significant implications for digital health.

(1) To Leverage The Power of Data, Interoperability Is Essential

Data are useful only to the extent you can access, analyze, and share them.  It increasingly appears that the genius of the Obama campaign’s technology effort wasn’t just the specific data tools that permitted microtargeting of constituents, or evaluated voter solicitation messages, or enabled the cost-effective purchasing of advertising time. Rather, success flowed from the design attributes of the platform itself, a platform built around the need for inoperability, and guided by an integrated strategic vision.

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Meaningful Use — A Pinch of 3 and a Dash of 4

While most folks are busy trying to keep up with Meaningful Use Stage 1, and Meaningful Use Stage 2 only recently emerged from the customary rulemaking process, those who plan for distant futures are providing us a glimpse of what is being considered for Meaningful Use Stage 3 and here and there a hint at the possibility of a never before mentioned Stage 4 and beyond. Since Stage 2 is still somewhat theoretical, there is little value to enumerating the proposed measures of Stage 3, which is not due to take effect until 2016, but it may prove instructive to take a general look at the overall direction that seems to be favored by policy makers for future design and use of EHR technologies. To that end, several new proposed measures seem most enlightening.

The New US Census Bureau

Stage 1 of Meaningful Use added language, race and ethnicity to the customary demographic information collected from patients, such as name, address, date of birth, gender, etc. Stage 2 proposes to add language, race and ethnicity to clinical summaries provided to patients or sent to other providers of care. So the patient header of a Stage 2 clinical summary might look something like this:

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A Cowardly New World

Last month, the National Post’s Tom Blackwell reported that a growing number of hospitals say patients and their families are secretly recording doctors and nurses. Some say it’s a symptom of the breakdown of trust being patients and their physicians.  Welcome to a Cowardly New World.

The biggest examples that reported in the National Post included a video camera installed in a clock radio to secretly record doctors and nurses as they treated a patient.  The footage was used as evidence regarding substandard care at Sunnybrook Health Sciences Centre in Toronto.  At Toronto’s University Health Network, a video camera was reportedly concealed inside a teddy bear.  A camera concealed in a wrist watch was used to record evidence against a Calgary psychiatrist.  Smart phones are also being used overtly and also surreptitiously.

I have experienced this first hand in the ER.  On one occasion during a night shift, as I was about to stitch up a patient’s cut, his buddies asked if they could record me doing it.  I thought it was kind of cute and innocent.  The recording took place in a closed room away from other patients so there was no risk anyone else could be filmed surreptitiously.

To be clear, that example was overt.  I had another patient encounter that was quite different.  I remember seeing an elderly patient who came to the ER with a medical problem.  Both the patient and a relative were present in the room the first time I saw him.  I came into the room a second time to give the patient and the relative some test results.  As I walked into the room, I noticed that a cell phone was on a chair in the room; it was seated in the middle of the seat cushion, sort of like an invited guest.  I paid no further attention to it.

The relative said the patient’s daughter (a physician) and was en route the hospital to speak with me.  I started to tell the patient and the relative my working diagnosis and my management plan.  Suddenly, the cell phone talked!  A voice emanated from the smart phone’s speaker disagreeing with me!  The daughter had been surreptitiously listening in all along.

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Let’s Talk About Stress

By MICHAEL PAINTER, MD

I am here in California at the Health 2.0 conference with 2,000 health care innovators. One of the most popular Health 2.0 sessions is called The Unmentionables—where speakers discuss those important things that affect our health but we’re often afraid to address. I participated in thisyear’s session where we talked stress—what it is and how it’s making us sick.

I’m an avid cyclist. That means I train a lot. Training on a bike means purposefully and intensely stressing your body—sometimes ridiculously hard—in order to make your body stronger, fitter and faster. In that sense stress can be really good. You can’t get stronger without it.

But here’s the key: as you ratchet up that stress—the miles, the hours on the bike, the intensity— you must work just as hard on the flipside, the buffering. The more you train, the more you have to focus on the rest, the sleep, your social supports, the yoga, the nutrition—whatever it takes.

If you don’t buffer you will burn out, get injured or sick, or all of the above. Without buffers, the stress will crush you.

The Robert Wood Johnson Foundation has been thinking about stress and its connection to health for quite some time. We’re finding that in many ways we have a culture of stress rather than a culture of health. We need to understand that and work together to fix it.

I’m a family doctor and used to practice at a community health center in Seattle. I recently came across a story that reminded me of many of my former patients. Jeanette is a young mother living in Connecticut experiencing major stress in her life: she just had baby, was suffering postpartum depression, lost her job, was facing eviction, and her relationship was in trouble. Not surprisingly, her stress also affected her baby, Shiloh—just weeks old. Shiloh wasn’t smiling, didn’t play, and didn’t communicate.

When we’re under stress, our bodies produce an increased amount of cortisol. A certain amount is healthy, but too much over a long period of time can have very negative effects—especially in a developing brain. That is likely what was happening to Shiloh. Stress can exacerbate or cause lifelong illness like diabetes, depression and heart disease.

At RWJF we wanted to understand how the public perceives and manages stress, so we conducted a public opinion survey on stress with NPR and Harvard’s School of Public Health.

Here’s some of what we found:

• Half of those we surveyed had a stressful experience in the past year.
• Most who reported high stress were already in poor health—including many who have chronic conditions or illness.
• The vast majority said that stress negatively affects their family and social lives, how they perform at work—as well as their health.
• Over half of those with a great deal of stress and a chronic illness or disability said stress made their symptoms worse and their condition harder to manage.
• Over 90% said they manage or buffer stress by spending time with family and friends, exercising, eating well, or doing outdoor activities,
• Unfortunately, only 50% said they do things to buffer their stress.

The numbers, of course, are important, but the stories are even more powerful. Jeanette and Shiloh did get help from an RWJF-funded initiative, Child First—a home visiting program that helps stabilize families with young children. But that’s just one story; there are many, many more. When NPR asked people to share stories about the stress in their lives, they received an overwhelming number—6,000 responses when they typically only get about 500.

Why? Americans are stressed; they know it, and they want to talk about it.

Health isn’t just a lack of illness. It’s so much more—it’s enjoying and embracing life—that includes successfully managing life’s stress.

The goal of our work is health and well-being for everyone. We can’t get there unless we address the stress in our lives. (See our infographic about how to move from a culture of stress to a culture of health.) That means we must try to reduce it where we can and learn to directly manage it where we can’t.

What we’re finding: stress is making us sick.

The good news: we don’t have to let it.

Dallas Police Officer transported to Texas Health With Ebola Symptoms

By THCBist

Local media reports that a Dallas police officer who accompanied health officials to the apartment of Ebola patient Thomas Eric Duncan has been . Hospital officials are not identifying the man, who was rushed by ambulance to Texas Health this afternoon after visiting a local walk-in clinic complaining of flulike symptoms. However, local TV news reports indicate that the individual appears to be  officer Michael Mannig.  Mannig does not appear to have been on the list of high risk contacts, meaning he has has probably remained on active duty, which if true, could spell serious trouble for health authorities tracing his contacts.

 

The #1 Reason Why Mobile is Critical to the Evolution of Healthcare

By NIRAV DESAI

Screen Shot 2014-09-16 at 8.54.48 AMWhen you realize that 40% of premature deaths are driven by poor behavior like smoking, alcohol abuse, poor diet and exercise, you have to start asking some hard questions about how to promote better care:

  • How can we make sure people are listening to their doctor’s advice once they leave the office?
  • How do we get people to take their life-saving medications after they’ve been discharged from the hospital?
  • How do we get insight into whether patients’ conditions are deteriorating so that we can make adjustments before they have to make a trip to the ER?

The optimal solutions for these kinds of healthcare challenges encourage patient engagement and incorporate insights. The ultimate tool for this is mobile technology. Why is that?

First, people have already voted with their wallets on which technologies they will welcome into their daily lives – smartphones and tablets.

Second, people are voting for these technologies with their time. A recent study indicated that people check their smartphones 150 times a day on average. Even if you’re on the low end of that average, you’re likely to admit that it is the one tool you use most frequently and find indispensable to your lifestyle.

That’s because you can select the apps you want and customize your smart device to your lifestyle needs, whether it’s for entertainment, news, maps, weather, finance, increasing productivity, etc. You have what you need whenever and wherever you need it. No wonder you’re engaged. So, why should healthcare try to create its own separate engagement tools when people have voted for mobile with their time and money? It shouldn’t. More importantly, it doesn’t have to.

Nowadays, our smart devices have integrated and finely tuned so many technologies that can be applied to healthcare. Some examples include:

1) Phone/Video – to connect to a clinical expert
2) Camera – to take high-resolution images of a wound or skin lesion
3) GPS – to identify a patient’s location on a hospital floor, in their house, or in their community
4) Accelerometer – to track how a patient is moving or not moving
5) Messaging – to send text messages that remind patients how to follow their care plan (i.e. when to take their medicine)
6) Connectivity – to pull information from sensors and wearables to collect biometric data

As importantly, companies like Apple and Google who build the operating systems for most of today’s mobile devices or Samsung, Nokia and LG who actually build many of those devices, are continuously going through the hard part of integrating all the latest great technologies into their products. Apple, for example, will be building biometrics and personal health records into its next generation of operating systems and devices.

The bottom line – people are highly engaged with mobile devices and the innovation opportunities for healthcare are only getting better. The time to leverage mobile for healthcare to engage patients and gain insights is now. Before your competition does.

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