The Patient-Centered Outcomes Research Institute (PCORI) is an independent, non-profit organization created by Congress in 2010. Our mission is to fund research that will provide patients, their caregivers and clinicians with the evidence-based information needed to make better-informed health care decisions.
We’re committed to continuously seeking input from a broad range of stakeholders to guide our work. So as part of that effort, we’re asking for public comment on our first draft National Priorities for Research and initial Research Agenda, which provide a framework for and identify the broad questions that must be addressed so that patients can make better and more personalized decisions in partnership with their clinicians.
We released the draft priorities and agenda on January 23 for a public comment period that runs through 11:59 pm EST on March 15. You can read the draft priorities and agenda, answer 10 questions about them and provide general comments, here
We encourage you to provide comment through our website, but we’ll also accept input by mail. Responses received through pcori.org will be displayed for public view on the site.
After reviewing public comments and other feedback, PCORI will publish a report summarizing the input and explaining how it led to changes in the draft priorities and agenda. PCORI’s Board of Governors then must adopt the priorities and agenda before primary funding announcements can be issued.
PCORI is counting on you and your colleagues to you to help shape our national priorities and research agenda. Your feedback and perspective will help insure that our work is responsive to the needs of patients and those who care for them.
So please visit pcori.org today to provide comment. And to receive regular updates and funding announcements from PCORI, please subscribe to our mailing list.
Bill Silberg is the Director of Communications at PCORI. Reach Bill at bsilberg@pcori.org.
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I wish you the best. My hope is that it’ll 5-4, maybe even 6-3 to uphold (Court Wonk Watchers are predicting that).
I have written about your effort on my REC blog. I support your mission.
Bobby, we can’t speculate on what might or might not happen as a result of any number of policy, legal or other developments, the Court’s decision included. PCORI, its staff, Board and associated committees, all have important work to do as required by law, and we’re focused on doing what the law asks of us, as diligently and fully as we can.
PCORI is enabled under PPACA. What happens if SCOTUS strikes the ACA down in toto?