Uncategorized

Online communities helped psoriasis sufferers

In one of the first articles of this type I've seen published in a mainstream medical journal, in this case the Archives of Dermatology, there's some evidence that being in an online community helps patients. This study is from our friends at the Partners Center for Connected Health which is run by Joe Kvedar, himself a dermatologist. (No I haven't spoken to Joe about it and I don't know if his specialty is why they picked on psoriasis—other than it’s a very nasty condition).

Anyway, the key take-away from an attitudinal study of over 200 patients in five online communities is that:

Almost half (49.5 percent) of participants perceived improvements in their quality of life and 41 percent perceived improvements in psoriasis severity since joining an online support community.

And all this from a treatment with no costs and no side effects. Even Syd Wolfe — new head of committee member of drug safety at the FDA much to Forbes dismay— (Editor's note: That'll teach us to read Forbes! Goldstein got it right. and yes it is that Sydney Wolfe) would approve!

I expect that as Health 2.0 tactics go mainstream we’ll hear a lot more about these types of cases.

Livongo’s Post Ad Banner 728*90

Categories: Uncategorized

Tagged as: ,

11
Leave a Reply

11 Comment threads
0 Thread replies
0 Followers
 
Most reacted comment
Hottest comment thread
10 Comment authors
Bill McCulleyMariajohnAnnedead sea Recent comment authors
newest oldest most voted
Bill McCulley
Guest

This is an incredible story of a women in San Diego California who after 10 years of battling psoriasis and eczema found total relief in 5 days. A True story from a real person. Read more about her incredible story!
I hope this is helpful to those of you suffering from psoriasis and eczema!

Maria
Guest

Have had enough with Vitiligo? Don’t Give up your hope too soon. Our medically proven Vitiligo Treatment will make you live your life all over again. It’s easy, It’s safe, It’s quick and It’s guaranteed… Have the best Vitiligo Cure at Curevitiligo. http://www.curevitiligooil.com

john
Guest

What is psoriasis? What causes psoriasis? Is there a cure or treatment for psoriasis? Psoriasis is a skin condition, it is a disease, but it is not contagious. The name comes from the Greek word for “itch.” It can be hereditary, caused by external influences (allergic reaction to foods or the environment) and sometimes stress. 4-5% of the population is known to be affected, and this number is growing. However, it is suspected that 1 in 5 people have some form of psoriasis either descripts or none descript. Once you have psoriasis, it is very likely you will have it… Read more »

Anne
Guest

Psoriasis is a disease whose main symptom is gray colored patches on the skin which are red and inflamed underneath. In the United States, it affects 2 to 2.8 percent of the population, or between 5.8 and 7.

dead sea
Guest

Hello, I have read carefully the blog posts, and I believe that I can assist you in locating more information relating to the topic. Although there are many cures to skin disease and head Psoriasis, there is only one proven and very efficient remedy to reduce the disease to a negligible state for long periods of time and, hence, to reduce the overall suffering caused by it. In a study published by the Dead Sea in Israel, it seems that the perception of visitors in the medical-tourism sector has been correct. At least, according to the study, it is now… Read more »

antivitiligotablets
Guest

Our Anti Vitiligo Tablets treatment is a completely outstanding product and there is absolutely no alternative to its unique formula. It consists of a formulation of purely herbal & natural ingredients blended together in a specific proportion to fight and cure Vitiligo permanently. Our Anti Vitiligo Tablets treatment is a completely guaranteed and clinically proven herbal and 100% natural treatment for Vitiligo. Thousands of patients have been successfully cured with our Anti Vitiligo Tablets over the past few years. http://www.antivitiligotablets.com Our Anti Vitiligo Tablets treatment is fully guaranteed. We are so confidant about the effectiveness of Anti Vitiligo Tablets, that… Read more »

John M. Grohol, PsyD
Guest

Just another study in a decade’s worth of research in the literature showing the benefits of online self-help support communities (which significantly pre-date the marketing-hyped Health 2.0 world).

dree
Guest

Today’s the world is returning towards natural way of curing due to the harmful effects of today’s chemical & synthetic medicines. People are deeply worried on this issue and also insisting to use natural way of curing to get health & security.
Our vitiligo cure process is 100% Natural / herbal.
http://www.supercareproducts.com

Laura W
Guest

I am an independant associate for the Watkins company, and we have at least 2 products that psoriasis patients have found to help a great deal.
The Red Clover Salve, and a nutritional supplement for Hair, Skin & Nails.
see http://www.watkinsonline.com/pdf/products/RedCloverUS.pdf and http://www.watkinsonline.com/productdetail.cfm?Product=02270&gCatalogLocale=USA for more details.

Brad
Guest
Brad

Response rate was unknown, but what data they could collect, between 12-25%, not ideal. I suspect a strong response bias (n was only 260 in the end), and this is far from a representative sample. I would not draw any big conclusions.
Brad

anon
Guest
anon

Correction Matthew: Wolfe is just on the committee as a member, not in charge. Big difference.