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Month: August 2008

Health 2.0 for cancer trials

Greg is well known to THCB readers as a long term commentator on the oncology scene with a  keen interest in chemotherapy assay testing. Here he writes about a new type of clinical trial — Matthew Holt

The traditional meaning of Health 2.0, according to Jane Sarasohn-Kahn’s "Wisdom of Patients" has been the use of social software and light-weight tools to promote collaboration between patients, their caregivers, medical professionals and other stakeholders in health.

An example of this in cancer medicine is Individualized Online Clinical Trial Protocol Version 1.0 by the Weisenthal Cancer Group, a Phase II evaluation of individualized cancer treatment with traditional cytotoxic chemotherapy, targeted anti-kinase drugs and anti-angiogenic agents.

With most clinical trials, investigators never give out information as to how people are doing. Most trials are failures with respect to actually improving things. The world doesn’t find out what happen until after a hundred or 500 or 2,000 patients are treated and then only 24 hours before the New England Journal of Medicine publication date.

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The call for government EHR unification

While on my VistA kick (here and here), I need to respond to several important errors of understanding in the recent press release hailed with a “Bravo!” from Fred Trotter. I also wanted to take the opportunity to mention a significantly broader and more meaningful opportunity that the open source community should be rallying around.

First, so people are clear – the Department of Defense does NOT currently use VistA. They haven’t since their 1988 decision to have SAIC fork the code. The only reason that VistA is mentioned as part of the DoD’s selection process is that their own physicians are clamoring to throw away the current system in favor of VistA. While the DoD is correct in identifying some of the weakness of VistA, they also appear to recognize many of its outstanding clinical attributes.

Comments from a July 21 letter from Principal Deputy Assistant Secretary of Defense for Health Affairs Stephen Jones seem to indicate a ray of hope for a VistA compromise: “There is a strong feeling here and at the VA that the best approach is a convergent evolution of the two systems. This approach optimizes the strengths of both systems while creating interoperability that will drive more universal information exchange.“

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Personalities drive prescribing

PharmaLive, the website that bills itself as the "Pulse of the Pharmaceutical Industry," recently ran this press release from PeopleMetrics, a marketing research firm. The group surveyed physicians to measure the effectiveness of sales representatives pushing atypical antipsychotics for five leading US-based pharmaceutical companies: AstraZeneca, Bristol Myers Squibb, Janssen, Lilly and Pfizer.

The survey’s questions measured physicians’ response to the salespersons who visit their offices. Depending on the answers, the docs were categorized as either Fully Engaged, Engaged, On The Fence and Disengaged. "Overall, 31% of physicians were Fully Engaged or Engaged, while the largest proportion of physicians (53%) were On The Fence," the research showed.

"Sales representatives must develop personal relationships with their
physicians to achieve the highest levels of engagement," the survey
concluded. "In fact, emotional components such as friendship with the
reps are the strongest indicators of Fully Engaged physicians. . . We
find that this emotional dimension is key in understanding physicians’
perceptions toward their reps and the pharmaceutical company as a
whole" and will be "the most impactful drivers of physicians’
prescribing behaviors."

Gee, and I thought it was the peer-reviewed literature they dropped off showing how well the drugs work. Silly me.

This post first appeared on Merrill Goozner’s blog, Gooznews.

Health 2.0 guerilla activity at SXSW

In a fun piece of spontaneous local guerilla activity, Jay Drayer from CareFlash (based in Houston, Tx) who you’ll see at Health 2.0 this Fall, is also trying to get a Health 2.0 panel accepted at the media hipsters conference known as South by Southwest in Austin, Tx next spring.

Now I’m not a big fan of democracy and rabble rousing in these matters, but South by South West is. Apparently the way that works is for people who want to see Health 2.0 featured there to go to the 2009 SXSW Interactive Panel Picker and vote and leave enthusiastic comments. You know what to do!

Omnimedix still fighting Dossia owners

KleinkeJD Kleinke and Omnimedix are still in business and still fighting a pretty serious lawsuit
about the Dossia breakup. I talked with JD yesterday. The team is working on several super secret client projects, but it’s tough to run a small consulting shop and keep a protracted lawsuit open, so they’re passing the hat! Why keep the lawsuit going?

Well, there’s obviously stuff that JD couldn’t tell me, so this is speculation but it’s clear that this is much more than an a “vendor didn’t deliver/client didn’t pay” dispute. JD was always very vocal about an open nonprofit being the protector of the Dossia members’ employees’ data, so I surmise that contractual disputes about who got access to what data are at the root of this. It would be interesting (if practicably impossible) to compare Dossia’s contact with Omnimedix in their contract with Indivo.

More generally, JD and I talked about whether there’s a need for a Dossia-type entity when there’s Google Health and HealthVault. Here’s what JD said about Microsoft and Google’s privacy stance.

“In both cases they’ve violated their own operating principles as businesses to do the right thing.”

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T-Shirt Health 2.0 conference ego surfing

So this is how fashion insurgencies start…Brian Klepper sent me this email. I assume they felt like the two Hollywood starlets who show up at the Oscars wearing the same dress!

“So David Foster, Director of Product Management for Healthwise, visits Jax where he’s from. Because he reads THCB, he knows that I’m here, and so he drops me a note suggesting we meet at the Beaches Diner for breakfast this a.m. I’m in standard uniform, shorts and a t-shirt. I walk in and he’s wearing the same shirt. I think this means you’ve officially become a brand. We had the cashier take a picture to prove it.”

Health 2.0 Tshirts

Health spending disconnect

There’s a disconnect between who Americans believe is responsible for their personal health status, and who should pay for health care.

On the first question — personal responsibility for health choices — 82 percent of Americans believe that they alone are responsible for their health.

However, only 44 percent believe that they should bear no responsibility for paying for health care.

The Vitality Group, a subsidiary of Discovery Holdings Ltd., surveyed Americans and found that most people (59%) look to their employer to bear at least some responsibility for health costs. Nearly one in two (46%) see the government as a payer.

Only 56 percent of Americans see themselves as picking up any part of health care costs.

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Voters shielded from high health costs don’t see the residual impact

The health care issue has a history of being named by voters as one of the biggest problems we face — until the problem de jour comes along and pushes it off the list. In 2008, that seems to be happening again with the economic downturn, the mortgage mess, and $4 gas surpassing health care as the big issues.

When asked to name the most important financial problem facing families today by the Gallup organization:

    * 29% said energy and gas prices    * 18% said the high cost of living and inflation    * 14% said a lack of money and low wages    * 9% said health care costs

Policy experts can point to the high cost of health care but Joe and Mary Middle- America are still clearly sheltered from the real impact of these costs largely by the employers who still provide so many of us with affordable health care.

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Happy Fifth Birthday, THCB

Five years ago today, without really knowing what I was getting myself into, I wrote the first post on The Health Care Blog.

Birthday_2If you forced me to come up with a reason why, I would have told you that I thought that a blog would give me a chance to build my nascent consulting business — although I think the process was actually more useful to re-educate me about health care. I’ve never calculated the time spent on THCB, but I’m pretty sure it hasn’t been a rational financial decision.

The first post was about what was wrong with Medicare (and it’s still equally valid today and probably will be equally valid in 2013!) For the first little while I tried hard to maintain an analytical air about the future, while trying to avoid giving overt opinions. It took me a month before I started editorializing, even though the first one was introduced in a mealy mouthed way—as I somehow didn’t trust people to distinguish between what I thought ought to happen and what I thought was going to happen. But that didn’t last too long, thank heavens.

For the first year or so I was probably writing for myself and about 3 other people. Back then Russ at the late lamented Bloviator was writing about public health, Don Johnson also was writing about health care at The Business Word (Don left blogging but made a comeback and has been an occasional contributor at THCB). Back then my two favorite medical bloggers were MedPundit (who left blogging then came back then eventually left again), and DB’s MedRants who’s still going strong. And of course, although it took me years to find, Mr HIStalk had already staked out the hospital IT market. But in all honesty it took a long while before anyone took us seriously.

Now, the WSJ and New York Times have health-related blogs, and over 800 are listed on the Healthcare 100, even if THCB has fallen a few spots since their recent recalculation! While I’d argue that many of the 800 are not much about health care, but about science and fitness, and that the ranking is pretty arbitrary, there’s no question that—as in technology and politics—health care has been changed by blogging.

In fact THCB has been involved in some of the big debates about the future of health policy, and I’ve had the chance to meet some policy movers and shakers I’d never have met in my old consulting life. Heck, Paul Krugman even devoted a page to THCB in his latest book! (I, of course, only found out when a friend sent me a copy with a note about it!). Nonetheless, I’ve had fun meeting liberal journalists like Jonathan Cohn, libertarian think tank guys like Michael Cannon, and have interviewed a cross section of the intense (Shannon Brownlee), the too-nice for their views (David Gratzer) and the right-wingers barely hanging onto to reality (Grace-Marie Turner). Not to mention lots of fun with early day podcasts with libertarian surgeon Eric Novack, who still makes the odd appearance here.

THCB has also given me and many others the opportunity to see some real changes in health care. The biggest for me personally has been the front row seat I’ve had in the development of Web 2.0 in health care (yes, yes, it’s called Health 2.0). What started as few small conversations 3 years ago has blossomed into a movement, and also for me and my partner Indu Subaiya, a day job! But there are lots of developments that have been covered on THCB and debated by its community, including quality, patient safety, EMRs, HSAs, individual insurance, cost-effectiveness, pharmaceutical marketing, PBMs, technology, and many many more.

And THCB really has changed into a community. Over the years, there have been many regular contributors, including those like Matt Quinn and Brian Klepper who’ve taken over the blog while I’ve been away, and contributed immensely at other times, too. And more recently, THCB has been a venue where other bloggers show some of their best stuff — I want to thank those like Jane Sarasohn-Kahn, Maggie Mahar, Bob Wachter, Paul Levy, Scott Shreeve and several others who let us feature their writing. It’s now very much a group blog — although it was only this year that I started to give my own pieces a byline rather than just assuming that everyone knew it was me! Now I’m happy to be just one of the crowd.

Moreover, THCB has always enjoyed lots of comments. Some are from people passing by just once or twice, but others like Tom Leith, JD (no, not JD Klienke), MG, Peter, tcoyote, Barry Carol and many more have come back time and again to comment and add really valuable insight. Some commentors are gone and much lamented (Theora Jones), some are gone and less so (Stuart Browning) — meanwhile, anyone want Ron Grenier back? Ron remains the only commentator banned from THCB (for outright rudeness), which I think underscores how great the tone of the discussion has been, despite the clear differences of opinion amongst the commentators.

So I want to leave you with two last thoughts.

First, what’s next? Well over the course of the next few months THCB will be continuing to evolve its look — there’ll be more content, more authors, more great debate, and more ways of finding that content. We’re going to be making some changes to the front page and some definitional changes to both make the sections clearer and make some of the best “perennials” easily visible. THCB now has its first professional editor/author, Sarah Arnquist, whom I hope will be using THCB as a stepping stone to her future Pulitzer Prize. She’s a journalist working at THCB while pursuing an MPH at Johns Hopkins. We’ll also be making it a little easier for advertisers to sponsor appropriate sections of THCB. Yup, while THCB has never directly made me a penny, it is finally showing the potential to be a real media site, which brings its own opportunities — and pitfalls.

Second, THCB’s great run wouldn’t have been possible without lots of help. I can’t possibly name everyone but I do want to shout out for a couple. My first assistant on the project was Ginny Pham-Kanter who helped get the blog a little more organized. But after Ginny had to retreat to graduate school, John Pluenneke took over. John’s been running the business and technical side of THCB since 2005 and this blog’s progress is more due to him than anyone else. Thanks, John!

These thank yous wouldn’t be complete without a thanks to everyone who’s ever written for THCB, or posted a comment. A blog is a microphone, but it’s only fun when that microphone is shared around. And finally, of course, thanks to you the readers.

The first few months there were only a few readers every week. When last month THCB had over 50,000 visits, those early days seem very distant. I’m really looking forward to the next five years!

But in the end, it’s all about one person sitting down and writing his or her thoughts and opinions — and hoping that somebody, who they probably have never met and probably never will, comes by to read them. On a personal note, thanks for reading mine. — Matthew Holt

 

 

Healthy Howard coverage expansion could inform future reforms

Howard County, Maryland is set to launch an ambitious universal health coverage, and the county’s top health officials says the effort will provide valuable lessons for future reformers.Fastfacts

Starting next month, 2,200 of Howard County’s 20,000
uninsured residents can enroll in the Healthy Howard Plan,
which will provide them access to primary, specialty and hospital care, and
prescriptions drugs for $85 or less a month.

Dr. Peter Beilenson, Howard County health commissioner and former Baltimore City health commissioner who ran for Congress in 2006, said this is the most ambitious local effort at universal coverage since San Francisco launched a universal coverage plan in April 2007.

Like Healthy San Francisco, Healthy Howard is not portable health insurance but rather health coverage for local treatment. Instead of levying a "pay or play" tax on businesses like San Francisco, however, Healthy Howard’s funding comes from individual premiums, county general fund dollars and substantial amounts of charity. (The Golden gate Restaurant Association is battling San Francisco in court over its tax.)

Beyond the grand ambition to provide universal health coverage, what Beilenson says  distinguishes Healthy Howard is its emphasis on personal responsibility, mandatory health coaching and a forthcoming rigorous evaluation.

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