The Wisdom of Patients – Social Media In Health Care

— citizens, patients, caregivers, "consumers" — are early adopters of
social media in health,
compared to other industry stakeholders
including providers, plans, payers, and suppliers such as pharmas and
medical equipment companies.

This is but one of many findings in my report, The Wisdom of Patients, which was published yesterday by the California HealthCare Foundation.

report covers the origins of social media in the morphing of Web 1.0 to
2.0; the current state of social media in health; business models,
opportunities and obstacles; a glimpse into the fuzzy future of Health
2.0; and, profiles several of the most pioneering figures in
health/social media including Amy Tenderich of DiabetesMine; Matthew Zachary of the I’m Too Young For This! Foundation; Jack Barrette, founder of WEGO Health and formerly with Yahoo! Health; Neal Sofian of Resolution Health; Dan Hoch, MD, of the Harvard Medical School; and, Ben Heywood, CEO of PatientsLikeMe.

Jane’s Hot Points: So
many people informed this report. I interviewed over 30 people to
listen to a broad range of perspectives, and benefited from the peer
review of people like Matthew Holt, Scott Shreeve, and Dmitriy Kruglyak.
I thank them all. I am fortunate to have had the California HealthCare
Foundation sponsor this research. They are a visionary organization
that supports and celebrates new thinking in health, particular in the
area of patient self-care and technology.

I look forward to learning from THCB
readers’ own perspectives on this topic. Please comment on this blog
and we can have ongoing dialogue here on the present and future of
social media in health.

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9 replies »

  1. Health social medias very useful thing specially for the patients of such disease which treatment take too long time like skin condition vitiligo and other such pigmentation disorder.Through Health social networks site patients share their experience with each other.

  2. Health care social networks are the ravolutionary step towards the better health condition and one of the best use of the internet.

  3. In Europe, a lot of Direct to Consumer-DTC-advertising is limited if even allowed in different European Union Member States. As a result, more and more Europeans are going online where technically legal “pull” sites (rather than the so-called “push” sites that constitute DTC)provide information about medical goods and services that consumers can purchase themselves. As dissatisfaction with public health systems increases in certain areas in Europe, more and more goods and services are found online by European as well as US consumers.

  4. It is so true – regular people are the early adopters. They are becoming more involved in their health care by researching conditions and providers. I think this is a positive step in the effort to improve health care.

  5. Thanks so much for blogging about this!
    I read through the report and found it very interesting. It confirms the trend I’ve noticed online the past few years.
    Health 2.0 and social networking presents an exciting future for health and health care. There is a huge potential for people to use the services to their advantage and for us to grow collective knowledge.
    Thanks again.