Shiri Sandler was diagnosed with RSD, (Reflex Sympathetic Dystrophy or Complex Regional Pain Syndrome), after surgery on a broken bone in her foot at the age of 20. Years later she faces severe chronic pain that has spread throughout her body and requires regular treatment with powerful painkilling drugs to control.
In this segment, she discusses the challenge of coping and how she use uses ReliefInsite, an online pain diary, to help manage her condition. She also talks about the stigma those with chronic pain can face when they seek treatment.
“I went to a GP in my neighborhood. And I said I have RSD. And he said. ‘Well, what does that mean?’ Well I have a lot of burning pain in my foot. And he looked down at my foot and said. You wear the wrong shoes. You’re making this up. And He kept going. You’re too young for this. You’re a hypochondriac. These drugs are going to kill you. That was my personal favorite. And he yelled at me for an hour and a half. And I sat there crying. Because you never feel you have to yell back at a doctor. Being told that what you’re feeling is in your head is terrible … ”