David Kibbe, the doc behind the continuity of care record (CCR), and the spearhead of the AAFP’s effort to get family practitioners using EMRs, gave some great comments on the final "looking ahead" panel at Health2.0. You can see more of David when he keynotes the Center for Information Therapy conference on October 8th in Park City Utah. Indu and I will be running a mini-Health2.0 panel at that same conference (with Revolution, Daily Strength & Organized Wisdom) on Weds 10th. But David didn’t get to say everything in San Francisco, and this is what he wanted to add:
1) What I really, really liked was the way in which so many of these
applications helped the patient/consumer help himself/herself — to be
better informed, to know their options, to take better actions, to hope
and act in their own best interests. This is exciting, and very
necessary, as physicians in primary care are already unable to meet the
demands upon them for care delivery, and this imbalance/shortage is
only going to get worse in the future. And it’s exciting because
empowerment is the key to saving the individual out-of-pocket
spending. As health costs continue to shift to the individual, Health
2.0 can really be helpful.
Healing without information is indistinguishable from magic…..And magic in health care today is unsafe and very expensive!
We need an informed (& empowered) health nation. Health 2.0 is leading that potential.
I won’t mention any specific examples, but all of the search engines,
all of the social media sites, and some of the consumer tools sites are
exciting in this regard, and quite real now. The demand for their use
will only grow.
2) What disappointed me was how much work the applications require of
the patient/consumer with respect to information discovery, data entry,
and interpretation of results/advice. There are two issues here that
I would focus upon:
– We need to help people discover, collect, store, and utilize the
relevant health information in digital (computable) format, e.g. the
CCR and XML. Until we do that, none of these wonderful applications
can be invoked at will without having to type in medications,
diagnoses, or family history, etc. And that is going to impact
– We need to find ways to share the task of personal health data
discovery and use — including all the repurposing of that data —
between the individual and his/her providers. These applications and
networks pose wonderful opportunities for patients and physicians to
work together in completely NEW and DIFFERENT ways, some of which we
saw yesterday, but for the most part hasn’t yet occurred.
In some respects, the unraveling of the "hairball" has to happen one patient-provider encounter at a time.
So, going forward to March 2008, I would recommend that the conference
include a panel(s) of demonstrations that show the patients/consumers
and providers working together in ways that re-define how health data
and information are collected, organized, and used in the therapeutic
and healing experience, and particularly how Health 2.0 enables this
data and information to be portable and interoperable — as these are
preconditions for re-use, re-purposing, and self-activation of the data
and information. Let’s show how these tools, networks, and communities can become mainstream in our society’s health system.