Call it what you want, white privilege and health disparity appear to be two sides of the same coin. We used to consider ethnic or genetic variants as risk factors, prognostic to health conditions. However, the social determinants of health (SDOH) have increasingly become more relevant as causes of disease prevalence and complexity in health care.
As a pediatric hospitalist in the San Joaquin Valley region, I encounter these social determinants daily. They were particularly evident as I treated a 12-year old Hispanic boy who was admitted with a ruptured appendix and developed a complicated abscess, requiring an extensive hospitalization due to his complication. Why? Did he have the genetic propensity for this adverse outcome? Was it because he was non-compliant with his antibiotic regimen? No.
Rather, circumstances due to his social context presented major hurdles to his care. He had trouble getting to a hospital or clinic. He did not want to burden his parents—migrant workers with erratic long hours—further delaying his evaluation. And his Spanish-speaking mother never wondered why, despite surgery and drainage, he was not healing per the usual expectation.
When he was first hospitalized, his mother bounced around in silent desperation from their rural clinic to the emergency room more than 20 miles from their home and back to the clinic, only to be referred again to that same emergency room. By the time he was admitted 2 days later, he was profoundly ill. The surgeon had to be called in the middle of the night for an emergency open surgical appendectomy and drainage. Even after post-operative care, while he was on broad-spectrum intravenous antibiotics, his fevers, chills and pain persisted. To avoid worrying his mother, he continued to deny his symptoms. Five days after his operation, he required another procedure for complex abscess drainage.
I was born in a rural village outside of Hue, Vietnam in 1976, a year after Saigon fell and the war ended. My family of four struggled to survive in the post-war shambles, and in 1981, my mother had no choice but to flee Vietnam by boat with my older sister and myself. Through the support of the refugee resettlement program, we began our lives in the United States in 1982, wearing all of our belongings on our backs and not knowing a word of English.
Though we struggled for years to make ends meet, we sustained ourselves through public benefit programs: food stamps, Medicaid, Section 8 Housing, and cash aid. These programs were lifelines that enabled me to focus on my education, and they allowed me to be the physician and public health expert that I am today. Looking back, I firmly believe that the more we invest in the lives and livelihoods of immigrants, the more we invest in the United States, its ideals, and its future.
So, when I first learned of the current administration’s plan to make it harder for immigrants with lower socioeconomic statuses to gain permanent U.S. residence, the so-called changes to the “Public Charge” rule, I felt outraged and baffled by its short-sightedness. Continue reading…
On Oct 19, I will begin to MC the health equity hackathon in Austin TX, which will focus on addressing healthcare disparity issues. Specifically, we will be using healthcare data to try and make an impact on those problems. Our planning team has spent months thinking about how to run a hackathon fairly, especially after the release of a report that harshly criticized how hackathons are typically run.
They argue that hackathons have become a way for corporations to trick legions of technologists into working for free. To a sociologist, that looks like exploitation, and it is hard to see how they are wrong.
After reading the article, I was struck by how many things about typical hackathons are backward:
Hackathons romanticize workaholism and celebrate insomnia – With hackathons typically running 24-72 hours straight, sleep is for the weak. Those who don’t sleep are seen as heroes.
Junk food is the only option – Most hackathons provide unhealthy snacks, high in fructose and low in protein. Participants are expected to fuel their unpaid work sprints with sugar and caffeine. These are frequently the only eating options available.
Healthy work patterns ensure that there are breaks. Opportunities to chat, or walk and take a break from work. And the idea of encouraging people to get up and move, let alone stretch, is unheard of at these hackathons. Hundreds of geeks, unable to shower, or leave the room, can create a pretty bad smell.
Judging is at best arbitrary, and in some cases completely rigged, with winners sometimes chosen in advance.
On occasion, I have seen harder stimulants used. Although I have never seen anyone on cocaine win, it does make for super-engaging project presentations. The presentations were not good, mind you, just engaging… In the “Holy Moses, this guy is about to present when he is clearly high AF” sense.
During National Minority Health Month, we acknowledge the potential for health information technology (health IT) – from electronic and personal health records to online communities to mobile applications – to transform health care and improve the health of racial and ethnic minorities.
Lack of access to quality, preventive health care, cultural and linguistic barriers, and limited patient-provider communication are factors that aggravate health disparities.
By increasing our investment in health IT policies and standards, we can help improve the quality of health care delivery and make it easier for patients and providers to communicate with each other – a huge step toward addressing the persistence of health disparities.
The study showed that African Americans and Latinos use their mobile phones more often to look for health information online. This has very important implications for personal management of health and interaction with the health care system.
However, barriers to widespread adoption of health IT remain.
For example, a 2014 consumer engagement report found that minorities were less likely to adopt online patient portals to access their health information than were non-Hispanic whites.