Categories

Tag: health data interoperability

Big Bucks, No Whammies: Patient Access Was Never the Finish Line

By STEPHEN FARBER

If you grew up in the 1980s, you probably remember Press Your Luck. Contestants stood in front of a flashing game board chanting, “Big bucks… no Whammies… STOP!” hoping the next square held cash instead of the mischievous cartoon character that erased everything they had won.

For years, assembling your own medical history felt remarkably similar.

You knew you had been treated at one hospital years ago, had imaging performed somewhere else, saw specialists who later retired, and changed insurance more than once along the way. One patient portal showed part of the story. Another required a password you hadn’t used in years. A medical records department offered to mail you a PDF after you completed a release form. Somewhere there was still a CD that no computer in your house could read. None of this meant your information had disappeared. It simply meant that putting it together depended almost as much on persistence as process.

That has always been one of healthcare’s great ironies. The industry became exceptionally good at documenting encounters. Every office visit, laboratory result, prescription, imaging study, discharge summary, and insurance claim was carefully preserved somewhere. What it never became particularly good at was helping individuals assemble those encounters into a coherent picture of their health over time.

For years, most of us accepted that as an unavoidable consequence of a fragmented healthcare system. In reality, it reflected a combination of technical limitations, business incentives, and regulatory uncertainty that made sharing information far more difficult than creating it. Patients often became the courier between organizations because there were few practical alternatives.

Quietly, that has begun to change.

While much of the industry’s attention has shifted toward artificial intelligence, another transformation has been taking place beneath the surface. The 21st Century Cures Act, Information Blocking regulations, standardized FHIR APIs, CMS interoperability requirements, and the continued evolution of TEFCA have collectively changed the trajectory of patient access. None of those developments solved the problem on their own, but together they have created an environment in which individuals can retrieve far more of their own health information electronically than was practical only a few years ago.

Although we’re still in the early stages, the technology has matured to the point where individuals can increasingly assemble and steward their own longitudinal health record. That changes the conversation. For much of the past decade, patient access was largely a policy discussion centered on whether people should have meaningful electronic access to their own information. Increasingly, the more interesting question is what becomes possible once they do.

As the market has evolved, complementary approaches have emerged. Some companies focus on helping individuals retrieve records directly from the organizations that hold them. Fasten Health is an interesting example because it begins with a simple premise: individuals should be able to assemble a record they control. Other organizations focus on discovering where records exist through exchange networks, while infrastructure companies simplify connectivity so developers can build applications without creating thousands of individual integrations. These approaches solve different problems, but they increasingly reinforce one another instead of competing.

That convergence has quietly moved the industry across an important threshold. For years, success was measured by our ability to collect fragmented data. Standards had to mature, regulations had to evolve, organizations had to expose information electronically, and software developers had to build practical ways of retrieving it. Much of that work occurred outside public view, but together it has made something increasingly realistic that once felt aspirational.

Bringing information together is a significant achievement because it gives people, often for the first time, a more complete picture of their interactions with the healthcare system over many years. A longitudinal health record tells us where someone received care, what diagnoses were made, which medications were prescribed, and what procedures were performed. Those are essential building blocks, but they rarely explain why decisions were made, what alternatives were considered, who participated in those conversations, or what mattered most to the individual at that point in life. Records preserve information extraordinarily well. Context has always been more difficult to preserve.

Healthcare has good reasons for operating around encounters because that is how care is delivered, documented, and reimbursed. People, however, experience their lives as a continuous story in which one decision influences the next, often over decades.

Continue reading…

Why Should Anyone Care About Health Data Interoperability?

By SUSANNAH FOX

This piece is part of the series “The Health Data Goldilocks Dilemma: Sharing? Privacy? Both?” which explores whether it’s possible to advance interoperability while maintaining privacy. Check out other pieces in the series here.

A question I hear quite often, sometimes whispered, is: Why should anyone care about health data interoperability? It sounds pretty technical and boring.

If I’m talking with a “civilian” (in my world, someone not obsessed with health care and technology) I point out that interoperable health data can help people care for themselves and their families by streamlining simple things (like tracking medication lists and vaccination records) and more complicated things (like pulling all your records into one place when seeking a second opinion or coordinating care for a chronic condition). Open, interoperable data also helps people make better pocketbook decisions when they can comparison-shop for health plans, care centers, and drugs.

Sometimes business leaders push back on the health data rights movement, asking, sometimes aggressively: Who really wants their data? And what would they do with it if they got it? Nobody they know, including their current customers, is clamoring for interoperable health data.

Continue reading…

EMR Integration Done Better, Cheaper, & Faster…Again? | Sansoro Health CEO Jeremy Pierotti

By JESSICA DaMASSA, WTF Health

Sansoro Health is a next-gen EHR integration platform for Health IT companies that need a better, cheaper, and faster way to integrate their products into EMR systems. What sets them apart in this crowded space? Listen in to hear co-founder and CEO Jeremy Pierotti paint a picture of perfect-world of interoperability.

Filmed at HIMSS 2019 in Orlando, Florida, February 2019

Jessica DaMassa is the host of the WTF Health show & stars in Health in 2 Point 00 with Matthew Holt.

Get a glimpse of the future of healthcare by meeting the people who are going to change it. Find more WTF Health interviews here or check out www.wtf.health

The End of the ‘Interoperability Showcase?’ | Niko Skievaski, Redox

By JESSICA DAMASSA, WTF HEALTH

Will there be a future that DOESN’T include an Interoperability Showcase at HIMSS because interoperability will be solved?? Redox Co-Founder & CEO Niko Skievaski gives us his analysis of how market forces, value-based care, and policy like the HHS ONC & CMS rules for APIs and data sharing are starting to right the ‘market failure’ of health systems being unable to share their data.

Filmed at HIMSS 2019 in Orlando, Florida, February 2019

Jessica DaMassa is the host of the WTF Health show & stars in Health in 2 Point 00 with Matthew Holt.

Get a glimpse of the future of healthcare by meeting the people who are going to change it. Find more WTF Health interviews here or check out www.wtf.health