Caregivers who care for aging, ill and
disabled adult family members face a broad array of challenges within their
daily lives. These challenges include stress, burnout, financial burdens,
career sacrifices, sleep deprivation, depression, isolation, and lack of
privacy. GuideWell believes it
“takes a village” to sustainably support family caregivers, and that single
point solutions are typically not broad enough to provide comprehensive relief
to family caregivers.
GuideWell, in collaboration with Catalyst @ Health 2.0, is excited to
announce the Caring for Caregivers Challenge — a Health Innovation Challenge
that seeks companies or non-profits with programs, platforms, technology systems
or services that have the potential to eliminate critical challenges family
caregivers face. Comprehensive approaches should connect caregivers to
resources, technologies, corporate benefits, and community networks to help
them with their unique personal health and wellness needs. Approaches should
Family caregivers caring for family members over the age of 65
2. Family caregivers caring for partners or adult
children under the age of 65 who are
mentally disabled, permanently homebound due to a physical disability,
terminally ill or who suffer from Alzheimer’s, congestive heart & pulmonary
disease, cancer, and/or stroke.
Jess and I are at Health 2.0 for Episode 95 of Health in 2 Point 00! To wrap up the conference, Jess and I talk about Jonathan Bush’s reappearance in health care on the stage at Health 2.0, with Firefly Health, with echoes of this direction in primary care by Tony Miller on the insurance panel. We talk about all the winners at Health 2.0, including the RWJF Challenge winners, Ooney with Prehab Pal and Social AI Impact Lab, and Omny who won Launch. My favorites from the conference were Indu Subaiya’s Unacceptables panel with two amazing speakers, Melissa Hanna, CEO of Mahmee & Joia Crear Perry, Founder and President of the National Birth Equity Collaborative. Catch highlights from Jess’s panel on social movements in health care as well! —Matthew Holt
The 2019 Health 2.0 conference just wrapped up
after several days of compelling presentations, panels, and networking. As in
the past, attendees were a cross section of the industry: providers, payers,
health IT (HIT) companies, investors, and others who are passionate about
innovation in healthcare.
One of the more refreshing themes of the
conference was an emphasis on how health IT can enable the delivery of
services. This is a welcome perspective as too often organizations believe that
simply deploying technology will solve their problems. In my 30+ years in
healthcare, I’ve never seen that work. What does work is careful attention to
the iron triad of people, process, and technology. Neglect one of these and you
will fall short of your goals. Framing opportunities as services that are
enabled and enhanced by technology helps us avoid the common pitfall of
believing “Tech = Solution” and forces us to account for process and people.
Provider Burn-out and Health IT
Several sessions focused on the impact technology is having on end-users, especially clinicians. One session featured a “reverse-pitch” where practicing physicians “pitched” to health IT experts on the challenges they face, especially with EHRs, and what they need in order to do their job and have a life. This was summed up elegantly by a physician participant as, “Please make all the stupid sh*t stop!” There’s increasing evidence that the deployment of EHRs is a major factor for clinician burnout and the impassioned pleas of the attendees resonated throughout the conference.
Other sessions explored how to we might address these problems with improvements in user-interface design, workflow, and interoperability. Demonstrations of advanced technologies like voice-driven interfaces, artificial intelligence, enhanced communications, and smart devices show where we are headed and hold out the promise of a more efficient and pleasing HIT for providers and patients.
This piece is part of the series “The Health Data Goldilocks Dilemma: Sharing? Privacy? Both?” which explores whether it’s possible to advance interoperability while maintaining privacy. Check out other pieces in the series here.
A question I hear quite often, sometimes whispered, is: Why should anyone care about health data interoperability? It sounds pretty technical and boring.
If I’m talking with a “civilian” (in my world, someone not obsessed with health care and technology) I point out that interoperable health data can help people care for themselves and their families by streamlining simple things (like tracking medication lists and vaccination records) and more complicated things (like pulling all your records into one place when seeking a second opinion or coordinating care for a chronic condition). Open, interoperable data also helps people make better pocketbook decisions when they can comparison-shop for health plans, care centers, and drugs.
Sometimes business leaders push back on the health data rights movement, asking, sometimes aggressively: Who really wants their data? And what would they do with it if they got it? Nobody they know, including their current customers, is clamoring for interoperable health data.
While patients can often find comfort, compassion, and support in Facebook Groups dedicated to their health conditions, they don’t realize that their identity, location, and email addresses can be found quite easily by other members of their closed group — some of whom may not have well-meaning purposes for that information. Called a Strict Inclusion Closed Group Reverse Lookup (SICGRL) attack, this is a privacy violation of unprecedented magnitude.
Fred Trotter is one of the leaders of a group of activists co-led by Andrea Downing and David Harlow that is taking on Facebook to correct this health data privacy violation.
While this interview was filmed at Health Datapalooza in the Spring of this year, Fred has just published an update that details how Facebook continues to ignore the issue and remains unwilling to collaborate on a solution.
Catch up on the background behind this data privacy issue — currently, one of the most important opportunities we as healthcare innovators have to learn about what NOT to do when it comes to user privacy and sensitive data.
On Episode 94 of Health in 2 Point 00, Jess asks me about Healthy.io’s $60 million raise for at-home urine testing for kidney diseases, with the NHS on the hook & coming to the US, and Smile Direct Club going public with a $9 billion valuation—but quickly tanked (although to $7 billion). In other news, there’s a period tracker scandal with Maya and MIA Fem apps sharing sensitive data about women’s cycles and sexual activity with Facebook. Find out what Jess & I are looking forward to at Health 2.0 this week as well. See you there! —Matthew Holt
The system is unstable. We are already seeing the precursor waves of massive and multiple disturbances to come. Disruption at key leverage points, new entrants, shifting public awareness and serious political competition cast omens and signs of a highly changed future.
So what’s the frequency? What are the smart bets for a strategic chief financial officer at a payer or provider facing such a bumpy ride? They are radically different from today’s dominant consensus strategies. In this five-part series, Joe Flower lays out the argument, the nature of the instability, and the best-bet strategies.
Healthcare CFOs must look at the environment in which their system lives: Since 2007 the actual costs for the average middle-class family for many of the basics of life have decreased in real terms, while their actual costs for healthcare have risen 25%, or even more counting co-pays, deductibles, and out-of-pocket expenses. This long, continuing rise in the costs along with the continuing and increasing unreliability of the healthcare system (“Will it actually be there for me when I need it? Will it bankrupt me?”) create unyielding disruption.
I am no fortune
teller, but here are some things we can see right now that give us a sense of
Political shift: Public opinion has shifted. When polled about actual policies, healthcare has been cited repeatedly as the top concern of voters across the country. Voters’ top concerns are cost, the risk to patient protections in the ACA, and threats to “reform” Medicare by weakening it. The popularity of “single payer” proposals is a direct result of the cost and uncertainty of healthcare, a simple cry to “Do something!” Under this pressure we are more likely to see drastic solutions proposed and passed at the federal and state level or embodied in regulatory changes and lawsuits against industry practices.
Degradation of American life: With the opioid epidemic, the rise in suicides, the actual regression in life expectancy, and the increasing income and wealth divide, people increasingly feel that the healthcare industry is just not helping. They feel it is in fact part of the problem. The feeling that there is no one there to help us adds to the desperation of many parts of American society and heightens the political cost of the healthcare issue.
Public awareness: Healthcare is intensely personal, visceral. It’s crazy-making. Surprise bills, balance bills, other bills slipped through loopholes in the fine print or even in unwritten industry practices—what the industry considers standard operating procedure, the customers view as shocking, aggressive, and financially crushing.
The rebellion of the buyers: The percentage of buyers—such as employers, unions, and pension plans—telling various polls that healthcare costs represent a major problem for their business has more than doubled in the last five years and is now a majority. Buyers are pushing for choices to control costs and manage quality. They are beginning in greater numbers to demand reference pricing tied to Medicare rates, direct access to competitive bundled prices, and price transparency through centers of excellence, high performance networks and accountable care organizations. Some 65% of employers plan on implementing direct primary care in onsite or near-site clinics by 2020. Buyers are increasingly willing to take their beneficiaries elsewhere if your business can’t meet their demands.
In the Pacific Northwest, “accelerator-slash-think tank” Cambia Grove is quickly expanding as the region’s go-to healthcare innovation hub. Fully funded by Cambia Health Solutions, the organization is functioning as a neutral party to bring startups and healthcare system incumbents together to identify innovation priorities. What else is happening in health tech in Seattle, especially with a few of those famous big consumer tech companies headquartered up there? Tune in to find out!
Filmed at the Together.Health Spring Summit at HIMSS 2019 in Orlando, Florida, February 2019.
According to the California Health Care Foundation, from
2012-2014, nearly 20% of Californian adults who sought mental health treatment
did not receive it. It is believed that these figures may even be understated,
as The Substance Abuse and Mental Health Services Administration (SAMHSA) has cited that
nearly 60% of American adults with mental illness do not receive any treatment.
Unmet mental health
needs in California are attributed to a lack of access to appropriate services
and providers, as well as the cost of care, a factor that is often exacerbated
by a lack of health insurance.
mental health services play an important role in supporting those in need,
novel technologies can complement standard care delivery and provide
individuals and communities with more accessible and optimized mental health
services that focus on prevention, early intervention, family support, and
The Help@Hand Project is a California statewide collaborative project to bring technology-based mental health solutions to the public mental health system through a highly innovative “suite” of digital solutions. The project aims to expand access to mental health services by engaging and treating individuals that are underserved in the current traditional care delivery model. With technology becoming an integral part of everyday life, the collaborative hopes to leverage familiar devices as means to connect and better serve those in need. This Help@Hand project will utilize applications on smartphones, tablets, digital devices, or computers as a tool to engage, support and give access to treatment using innovative virtual engagement strategies. Focus areas include:
and Digital Therapeutics
Evidence Based Therapy Utilizing an Avatar
Data Collection for Early Detection and Intervention
Sharing a hotel room, however, does not a marriage make. In order to get better digital health interventions to market faster, we need what I’m calling a Partnership for Innovators, Policymakers and Evidence-generators (PIPE). As someone who functions variously in the policy, tech and academic worlds, I believe PIPE needn’t be a dream.