Josh Sommer – A Patient Looking for a World of “Data Liberacion”

In this part of the panel debate on the Role in a World of “Data Liberacion” founder of Chordoma Foundation Josh Sommer tells the story about how he was diagnosed with Chordoma and how he funded the Chordoma Foundation with his mother as a reaction to the lack of treatments available. Josh is working to help coordinate data sharing between different researchers.

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